by independencenw | Aug 13, 2009 | caregivers, customers, domestic employees, independent contractors, multnomah county, resource
From the OrPTI blog:
Recognizing that most kids enjoy the zoo, but some have a harder time than others getting here, Oregon Zoo is inviting children (birth to 18 years) with disabilities and chronic or terminal illnesses, plus their immediate families, to a free evening as a VIP at the zoo on Wednesday, August 26, 2009, from 4-8pm. The Zoo is offering this experience for free as a community service, since medical expenses often prevent these families from enjoying a night out as a family.
Participating organizations (including OrPTI) are helping families get invited. You must registered through one of the organizations to attend.
As part of this special events, participants will receive:
* Free admission to the zoo, free train rides and free access to the Chimpanzee Challenge Maze (extra fee-based summer attraction)
* Complimentary popcorn
* Animal contact with a variety of animals at the Family Farm
* Special performances of the popular Wildlife Live animal show on the main stage
* Costumed characters around zoo grounds
* 25% discount at all zoo restaurants and food stands
RSVPs for VIP Safari will only be accepted through partners. To register contact our Salem office at 888-505-2673, or email dbethell@orpti.org.
by independencenw | Aug 11, 2009 | advocacy, aging into adult services, asperger syndrome, autism, caregivers, cerebral palsy, customers, domestic employees, employment, family support plans, high school transition, independent contractors, learning disabilities, policy, provider organizations, providers, resource, training, Turning 18
OrPTI (Oregon Parent Training and Information Center) presents the 2009 Building Futures Conference this October.
Building Futures is for anyone who has an interest in supporting individuals with disabilities as they transition from school to life. This includes Secondary Educators, Post Secondary Educators, Vocational Rehabilitation Counselors, Special Educators, therapists, counselors, service providers, job developers, and other rehabilitation specialists, and especially secondary students with disabilities and their families. Throughout the two-day event there will be presentations by regional and national experts on issues surrounding secondary transition and assistive technology. Check out the agenda here.
Scholarship information can be found here.
by independencenw | Aug 10, 2009 | customers, domestic employees, independent contractors, provider organizations, providers, resource
Independence Northwest is partnering with the three other Portland metro area brokerages, Mentor Oregon, Inclusion Inc. and The Arc Brokerage Services to bring you the 2009 Metro Area Resource Fair. There will be barbecue food, games and most importantly vendors and resources for you and your family to check out. This is a great opportunity to meet other community members and expand your knowledge of the local DD community and its resources.
A mailer has gone out to all customers of the four brokerages hosting this event.
Resource Fair Time 1:00pm to 5:00pm
Where: Kaiser Permanente Town Hall – 3704 N. Interstate Ave, Portland
BBQ Time: 2:00pm to 6:00pm
Overlook Park (directly across the street)
by independencenw | Aug 7, 2009 | advocacy, caregivers, customers, disability history, domestic employees, policy, providers, resource, training
Apply now for the PIP class of 2010! OCDD is now accepting applications for the Partners in Policymaking Class of 2010.
Oregon Partners in Policymaking (PIP), is an intensive 5-month leadership course for adults with developmental disabilities and parents of children with developmental disabilities. The program is operated by The Arc of Oregon and funded by the Oregon Council on Developmental Disabilities. It is free to participants.
The PIP program provides participants with the information to understand the past, the present, and the future for people with developmental disabilities and their families. It provides PIP members with the practical skills to positively affect their own lives and influence broader disability policy. Many of the over 180 Oregon Partners in Policymaking Graduates since 1994, have found participating in PIP has been a life-changing experience.
The website of the Oregon Council on Developmental Disabilities has more information about the program and comments from graduates. There is an application which can be completed on line and emailed or downloaded and mailed in.
Oregon Partners graduates have made a huge difference in our state on behalf of people with developmental disabilities. We hope that the Class of 2010 will continue to lead the fight for equality of opportunity, inclusion, and community participation.
by independencenw | Aug 7, 2009 | caregivers, customers, data, disability history, domestic employees, employment, independent contractors, policy, provider organizations, providers, reports, resource
United Cerebral Palsy released its 4th annual report on The Case for Inclusion yesterday. The report ranks all 50 States and the District of Columbia on how well they are providing community-based supports to Americans with intellectual and developmental disabilities being served by Medicaid.
Oregon ranks 20th. Our state-specific details are here.
State by state ranking:
1. Vermont
2. Arizona
3. Alaska
4. New Hampshire
5. Massachusetts
6. Michigan
7. California
8. Hawaii
9. Colorado
10. Connecticut
11. New Mexico
12. Delaware
13. Minnesota
14. New York
15. Idaho
16. Pennsylvania
17. South Carolina
18. Florida
19. Rhode Island
20. Oregon
21. New Jersey
22. Wisconsin
23. West Virginia
24. Kansas
25. Washington
26. South Dakota
27. Montana
28. Wyoming
29. Missouri
30. Oklahoma
31. Georgia
32. Maryland
33. Alabama
34. Nevada
35. Maine
36. North Carolina
37. Utah
38. Kentucky
39. Iowa
40. North Dakota
41. Virginia
42. Indiana
43. Tennessee
44. Nebraska
45. Ohio
46. Louisiana
47. Illinois
48. District of Columbia
49. Texas
50. Arkansas
51. Mississippi
From the UCP website on the 2009 report:
- Positively, there are 1,536 fewer Americans living in large state institutions (more than 16 beds). This is a bigger drop than seen last year. However, there remain 169 large institutions (4 fewer) housing 36,175 Americans;
- Negatively, only nine states (down from 11) report more than 2,000 residents living in large public or private institutions – California, Florida, Illinois, New Jersey, New York, North Carolina, Ohio, Pennsylvania & Texas;
- Sustaining the 2008 level, 19 states, but up from 16 in 2007, have more than 80 percent of those served living in home-like settings;
- Positively, seven states – Alaska, Arizona, Michigan, New Hampshire, Oregon, Rhode Island, and Vermont- direct more than 95 percent of all related funds to those living in the community rather than in large institutions. Colorado directs a very close 94.6% of funds;
- Positively, five states – Idaho, Louisiana, North Carolina, Ohio and Texas – as well as the District of Columbia experienced at least a five percent increase in people served in the community (HCBS waiver).
- Negatively, Wisconsin reduced number of people served in the community (HCBS waiver) by more than five percent;
- Nationally, 29 states direct more than 80 percent of all related funding to those living in the community;
- Positively, 39 states, up from 33, report having a Medicaid Buy-In program supporting individuals as they go to work and increase their earnings; and
- In terms of rankings, in total, 15 states had a sizable change in rankings over last two years. Pennsylvania (to #16 from #29 in 2007, dropping one place from 2008) and Missouri (to #29 from #41, dropping one place from 2008) improved the most with Wyoming (to #28 from #17) and Maine (to #35 from #24) dropping the most in the rankings.
Via DAWG Oregon and UCP
by independencenw | Aug 6, 2009 | assistive devices, customers, domestic employees, grants, independent contractors, providers, resource
Blanche Fischer Foundation (BFF) is a private, nonprofit 501(c)(3) charitable organization founded through a trust established by the late Blanche Fischer, a native of Long Creek, Ore. BFF makes direct grants on behalf of individuals with physical disabilities. The aid may relate directly to the disability or may less directly foster independence. In accordance with the terms of Ms. Fischer’s bequest, the foundation does not provide assistance for mental disability.
To be considered for a BFF grant, an individual must
- have a disability of a physical nature;
- reside in the state of Oregon; and
- show financial need.
Since its founding in 1981, the Blanche Fischer Foundation has awarded over $1.2 million to nearly than 2,200 individual Oregonians with physical disabilties. We have made more than 100 organizational grants during this time as well, furthering our mission.
by independencenw | Aug 6, 2009 | caregivers, customers, domestic employees, energy assistance, food assistance, homelessness, independent contractors, providers, rent assistance, resource
Care to Share is a Washington County based assistance program that helps individuals with emergency food, energy assistance, rent support and more. Check out their website or see below for more details.
Financial Aid
Clients facing financial crisis may apply to a special fund Care To Share maintains. Utility – When funds are available clients may request help on a limited basis if they are facing a shut-off. Rent – One day a month (the 3rd Thursday of each month) qualified clients may call to request assistance with rent for the following month. We do not provide: cash, bus tickets, transportation or costs, motel room rent, or medical costs.
Back to School
Each August, Care To Share provides backpacks filled with new school supplies for at-risk children attending Beaverton School District schools. These supplies are distributed though the school administration.
Oregon Heat
Care To Share has been given a contract with Oregon Heat to provide assistance for PGE clients to receive assistance with gas, electricity, wood, pellets and oil. Clients must call to set an appointment and to verify eligibility.
Water Grants
Care To Share provides water assistance to low income families facing shut-offs. These funds come to us from three different sources. We are thankful to Tualatin Valley Water District, Clean Water Services, and City of Beaverton Water. Without these contributions we could not provide this much needed assistance.
by independencenw | Aug 6, 2009 | advocacy, caregivers, customers, domestic employees, independent contractors, policy, provider organizations, providers
Disability Rights Oregon (DRO) is asking community members to help determine where to focus their advocacy efforts in the coming year. Let your voice be heard by taking the survey.
From the DRO website: Disability Rights Oregon (DRO) is a nonprofit that advocates for the rights of people with disabilities. Each year DRO decides how to allocate its resources based in part on information collected through this Community Needs Survey. We recognize that the list of important issues facing individuals with disabilities is very long; however, due to limited resources DRO cannot give equal attention to every issue. This survey is a tool for you to tell us what you think are the most pressing issues facing individuals with disabilities in Oregon.
by independencenw | Aug 3, 2009 | asperger syndrome, autism, caregivers, customers, domestic employees, independent contractors, provider organizations, providers, resource, training
Note: Providers for brokerages receive the Member rate.
Oregon Intervention System – General (OIS-G)
|
| Status: Available |
| Date: 8/11/2009 |
| Time: 8:30 AM – 4:30 PM (BOTH days) |
| Assigned Host: Riverside Training Centers |
| Presenter(s): Kelly Gordham, Lead OIS Trainer |
| Description:This is a two day training on BOTH Tuesday, August 11th AND Wednesday, August 12th.
The Oregon Intervention System© is a person-centered, non-aversive system of strategies to understand and respond to behaviors respectfully and safely, including personal physical interventions for critical or emergency risk behaviors. |
Location: St. Helens ESD Office
800 PORT AVE
SAINT HELENS, Oregon 97051-3008 |
| Cost: $50/co-op member, $100/non-member. (Check or money order payable to ‘Riverside Training Center Inc.’) |
| If you have any questions contact: |
| Name: Rose Johnson |
| Telephone: (503) 397-1922 |
| Email: rose.johnson@riversidecenters.com |
Mail registration form to:
Riverside Training Center
PO BOX 280
SAINT HELENS, Oregon 97051-0280 |
| Download Registration Form (doc) |
| Download Registration Form (pdf) |
|
|
<!–Title: –
Autism 1
|
| Status: Available |
| Date: 9/16/2009 |
| Time: 9 AM – 1 PM |
| Assigned Host: Danville Services of Oregon |
| Presenter(s): Mike Larson |
| Description:Autism I is a much-in-demand class which is both highly informative about Autism Spectrum Disorders, and practical about support needs and strategies. This course is highly recommended for anyone with an interest or need to gain a good basic understanding of autism and the wide spectrum of autism disorders. |
Location: East Portland Police Precinct, Community Room
737 SE 106TH AVE
PORTLAND, Oregon 97216-3197 |
| Cost: $20/co-op member, $40/non-member. (Check or money order payable to ‘Danville Services of Oregon, LLC’) |
| If you have any questions contact: |
| Name: Liz Saufley |
| Telephone: (503) 228-4401 |
Mail registration form to:
Danville Services of Oregon
9700 SW CAPITOL HWY STE 240
PORTLAND, Oregon 97219-5291 |
| Download Registration Form (doc) |
| Download Registration Form (pdf)
|
by independencenw | Jul 29, 2009 | caregivers, customers, domestic employees, emergency preparedness, independent contractors
The folks at OHSU have created a comprehensive emergency preparedness booklet for people with developmental disabilities called Ready Now. It walks you step-by-step through different emergency situations and helps you plan ahead to be ready in the event of an emergency. The booklet includes checklists for supplies, emergency contacts and more.
This is a great resource for customers, parents, providers and families. You’re sure to learn something you didn’t know and walk away with the tools you need to be prepared for an emergency. Check it out online here.
Thanks to Cynthia Owens for the tip.
by independencenw | Jul 27, 2009 | asperger syndrome, autism, caregivers, cerebral palsy, customers, domestic employees, epilepsy, independent contractors, learning disabilities, providers, training
The Disability is Natural web site is brought to you by Kathie Snow and BraveHeart Press, Kathie’s family-owned small business.
The mission of the site is to encourage new ways of thinking about developmental disabilities, in the belief that changes in our attitudes and actions can help create a society where all children and adults with developmental disabilities have opportunities to live the lives of their dreams, included in all areas of life.
As a parent, author, and trainer, Kathie challenges conventional wisdom and promotes new attitudes, new actions, and common sense in the disability arena. Since 1991, she’s presented hundreds of seminars at conferences and meetings across the United States and Canada. Her first book, Disability is Natural: Revolutionary Common Sense for Raising Successful Children with Disabilities, was published in 2001, and is now in its second edition. It’s a ground-breaking manual for change that’s used by parents, professionals, teachers, and several universities. Kathie launched this website in 2001, along with a variety of products that promote positive attitudes and perceptions about disability, including the one-of-a-kind “Disability is Natural” DVD. She’s written hundreds of articles, many of which are included in her second book, 101 Reproducible Articles for a New Disability Paradigm. She’s currently working on her next book on the inclusion of people with disabilities in community activities, like churches/synagogues, recreational activities, and other ordinary environments.
by independencenw | Sep 2, 2008 | base plus, caregivers, customers, domestic employees, independent contractors, policy, provider organizations, providers, rate increase, Turning 18
This spring, the Department of Human Services announced its intention to increase (in most cases) the amount of money Customers of Support Services can receive. Starting October 1st, 2008, the majority of Brokerage Customers statewide will see a 10% increase in the amount of money they have available to them. This amount will be prorated, depending on when you plan begins. (For example, if your plan year is December through November, you will receive an increase starting in the month of October and it will prorated until your plan ends in November).
In addition, providers of support services will also have an opportunity to reconsider their current rates. The State of Oregon Department of Human Services has published a new set of rate ranges; the top level of these rates has been increased by 10% as well.
We’re in the midst of implementing the 10% change. Whether you are a customer or a provider, check out our website for updates on the process.
by independencenw | Sep 2, 2008 | aging into adult services, asperger syndrome, autism, caregivers, cerebral palsy, customers, domestic employees, independent contractors, provider organizations, providers, resource, traumatic brain injury (tbi), Turning 18
The Oregon Training Series on Direct Supports will be sponsoring an exceptional opportunity on January 30th, 2009. Acclaimed author, trainer and advocate John O’Brien will be making a rare Oregon appearance and we urge you to take advantage of this opportunity. To view the flier, click here.
John O’Brien has been in the forefront of thinking and creating precedent setting innovations that helped create full lives for people with disability labels the world over. In addition to developing many of the planning systems used internationally, training thousands of facilitators and human service workers, he is a writer with enormous insight and sensitivity. The training will bring to life John’s new book “Making A Difference, A Guidebook for Person Centered Direct Support.”
This isn’t OCDS’ only opportunity. Visit their website for a number of excellent trainings on disability over the coming months.
Thanks to Cynthia Owens.
by independencenw | Aug 13, 2008 | aging into adult services, caregivers, customers, domestic employees, independent contractors, policy, providers, social security, taxes
The IRS reports that more than 5 million retirees, people with disabilities and disabled veterans who are eligible to receive a tax rebate under the $152 billion economic stimulus package have failed to take the steps necessary to get their checks.
Social Security recipients (including beneficiaries receiving Social Security Disability Income) and disabled veterans who earned at least $3,000 in qualified benefits, earned income, or both, may be eligible to receive an economic stimulus payment of up to $300 per person or $600 per couple.
But there is a catch. In order to receive an economic stimulus payment, eligible beneficiaries or veterans must file a 2007 income tax return, even if they are not required to file because their income is below the filing threshold. Since many low-income people with disabilities, along with retirees, have not filed a tax return in many years, they may not be aware that they are eligible to receive a stimulus payment. Most people in this situation will be able to file a Form 1040A, with only a few lines filled, in order to meet the filing requirement. This can be done up until October 15, 2008.
People with disabilities have more good news regarding the stimulus payments. Although SSI payments do not count towards the $3,000 annual income requirement for receipt of a stimulus payment, many SSI beneficiaries also receive SSDI benefits which do count. The Social Security Administration (SSA) has issued instructions explaining that the stimulus payments do not count as income in determining SSI eligibility and will not count as a resource for two months following the month in which they are received. (See earlier Special Needs Answers article.)
For more information on the stimulus payments and what income tax forms to file, go to www.irs.gov or call 1-800-829-1040.
For a recent article in USA Today detailing the IRS’s efforts to reach out to seniors and veterans with disabilities, click here.
For state fact sheets on unclaimed stimulus payments, click here.
Via Academy of Special Needs Planners. Thanks to Washington County Developmental Disabilities Program for the info.
by independencenw | Aug 9, 2008 | aging into adult services, asperger syndrome, autism, caregivers, cerebral palsy, customers, domestic employees, epilepsy, family support plans, independent contractors, provider organizations, providers, training, traumatic brain injury (tbi), Turning 18
Disability Compass provides information on services, products, and special health care resources for people with disabilities, their families and their supporters.
There’s a Respite Provider search and a comprehensive listing of agencies and individuals serving the disability community. We have partnered with Disability Compass in the first year of our operations and highly recommend this resource.
by independencenw | Aug 9, 2008 | caregivers, customers, domestic employees, family support plans, independent contractors, providers, Turning 18
Disaboom.com was founded by Dr. J. Glen House, a physician specializing in physical medicine and rehabilitation who is also a quadriplegic. His firsthand knowledge of the challenges faced by individuals with disabilities and those whose lives they touch has driven the Disaboom.com mission: to create the first comprehensive, evolving source of information, insight, and personal engagement for the disability community.
Check it out here.
by independencenw | Aug 9, 2008 | aging into adult services, caregivers, customers, domestic employees, independent contractors, providers, training, Turning 18
People looking for help in Portland and its surrounding communities often do not know where to begin. Locating such basic resources as food, shelter, employment, or health care may mean calling dozens of phone numbers, then struggling through a maze of agencies and services to make the right connections. 211info is built on a quarter-century history of restoring dignity to people’s lives by providing comprehensive information and referral service in this region.
Check out 211 here.
by independencenw | Aug 9, 2008 | asperger syndrome, autism, customers, domestic employees, family support plans, Turning 18
Carespace.com is the first major online community for caregivers. It’s a place for caregivers to meet, develop relationships, share stories and garner support for one another. They’re in their beta testing phase right now – you should join in and check it out.
While the community site is being tested and readied, you can check out their highly regarded blog here. Below, a snippet from a recent post.
The responses to my last post illustrate some of the many takes on the word “caregiver.” I’m grateful for all of them. Intense feelings about who we care for often supercede more general ideas around “caregiving.” So much so that any talk about grouping us together sometimes seems to detract from the individual experience.
At the same time, we know that parents of children with different illness or disabilities have a lot to share by way of information and support — even though when we do go looking for others, our search usually follows along the trail of a particular medical issue.
So I’ll be direct about the challenge of building the community for Carespace. I know that Carespace must be valuable and inviting to a mom and dad with an autistic child who want contact with others just like them. I also know that they may benefit from interaction with all sorts of moms and dads. (Not to mention that they may also be caring for an elderly relative.) But the reality today is that we haven’t established the idea of a global community of “caregivers.” It’s not yet ingrained in the overall dialog. To make this concept useful, we’ll have to discover the value of links between different “caring types.” This is something most of us will have to experience before we take it for granted.
Read more here.
This spring, the Department of Human Services announced its intention to increase (in most cases) the amount of money Customers of Support Services can receive. Starting October 1st, 2008, the majority of Brokerage Customers statewide will see a 10% increase in the amount of money they have available to them. This amount will be prorated, depending on when you plan begins. (For example, if your plan year is December through November, you will receive an increase starting in the month of October and it will prorated until your plan ends in November).