On behalf of Family and Community Together, I would like to invite you to become a part of FACT’s Parent to Parent [P2P] Mentor Program!
As you know, sometimes raising a child experiencing disability can be overwhelming, and may leave you feeling like the only person in the world facing these challenges. FACT P2P parent mentors share their experiences as parents and what they have learned – that having a child experiencing disability is just a part of a whole life… A life that will be beautiful, messy, smooth, and bumpy, just like most lives are. Mentors also listen with an empathetic ear because they have “been there.”
FACT’s parent mentors are a special group of volunteers who are trained to help support caretakers, whether they are parents, grandparents, siblings, or anyone else who has a family member experiencing disability. Parent mentors can be extremely helpful when someone is navigating through special education; with this in mind, FACT is particularly interested in identifying parent mentors available to support a family in preparing for and participating in their child’s IEP.
FACT believes that families are our greatest resource! Indeed, it is your personal experience and understanding of the particular challenges, joys, and milestones that come with raising a child experiencing disability that makes you such a powerful ally to a parent, whether s/he is just starting out in this journey or is further along. Because we know parenting does not stop at age 21, FACT continues to provide parent mentors who can assist others across a person’s lifespan.
As a parent mentor, you will join hundreds of other parents who are providing support, information, and resources to others across the country. FACT P2P is the Oregon chapter of the national Parent to Parent USA organization which has roots dating back to 1971. Parent to Parent USA now has chapters helping families in 27 states.
If interested, please see the P2P Mentor Application for the Parent Mentor application (available in English and Spanish). Parents with prior experience supporting families in the IEP process as an IEP partner are highly encouraged to apply!
Do you have questions about school transition services after high school?
Want to learn more about the Portland Public Schools Community Transition Program?
Do you have questions about services for adults with developmental disabilities?
Want to learn more about brokerage services?
Join PPS and the five Portland metro brokerages in 2013 for an evening informational tea! We’ll do a short presentation on the transition program as well as brokerage services. The evening teas will include light refreshments and tea – and an opportunity for you to meet with PPS and brokerage staff. Get your questions answered and learn more about programs available to young adults in transition.
The third tea is March 20th. The event will be held at Inclusion Inc. Please RSVP by calling 503.916.5817. See you there!
Apr 17th, 2013 – Hosted at UCP Connections
May 23rd, 2013 – Hosted at Community Pathways
Announcing the Parent to Parent of Oregon Mentor Training. Parent to Parent of Oregon’s mission is to offer high quality statewide parent to parent connections for families who have children with long-term health, developmental, behavioral or emotional conditions.
Parent to Parent of Oregon Mentor Training
When: Saturday, February 18, 2012; 9:30 a.m. -3:00 p.m.
Where: East Rose Unitarian Church 1133 NE 181st Portland, OR
Please call 503 706-0744 or
email firstname.lastname@example.org to register.
Lunch Provided. There is no cost for this training. Donations accepted.
Open to all community members! Announcing the Fall Parent Social put on by On-the-Move Community Integration. Meet and socialize with other parents and caregivers who are caring for an adult with developmental disabilities. Wine & appetizers will be served.
Wednesday, November 30th 2011 6:00 -7:30pm On-the-Move Community Integration, located at 4187 SE Division in Portland, Oregon.
Please RSVP to Deborah Waggoner, Community Inclusion Specialist
In early 2006, 12-year-old Joshua Littman, who has Asperger Syndrome, interviewed his mother, Sarah, at StoryCorps. Their one-of-a-kind conversation covered everything from cockroaches to Sarah’s feelings about Joshua as a son.
Tune into the PBS documentary program POV in August and September to see more StoryCorps animated stories.
Disability Scoop is the first and only nationally focused online news organization serving the developmental disability community including autism, cerebral palsy, Down syndrome, fragile X and intellectual disability, among others.
Five days each week Disability Scoop sifts through the clutter to provide a central, reliable source of news, information and resources. Plus, Disability Scoop is the only place to find original content and series like “Scoop Essentials” that take an in-depth look at what lies beyond the day’s headlines.
The IEP: What Parents Need to Know from 8:45am – 12:00pm on January 30th, with a special session from 12:30pm on Transition to Kindergarten—parents of children transitioning into kindergarten are invited to stay for a more focused look on this important milestone.
Check out Partners in Education, a self-study course designed by the fine folks at Partners in Policymaking to help parents of children with developmental disabilities navigate the special education system and help their children make the most of their potential.
Schools are places where children learn new information and skills. But they also are places where children are exposed to a multitude of life lessons…lessons like respecting each other as individuals, personal responsibility and the importance of contributing to the community.
This course has been developed to give you the practical skills you need to create an inclusive, quality education for your child. After completing this course, you will:
Understand the history of education of children with developmental disabilities;
Know and understand the key laws governing special education and how they protect your child’s rights;
Understand your role in your child’s educational experience;
Recognize the elements of an individualized education program and the role parents play in its creation and implementation;
Know how to advocate for your child to ensure a positive, quality educational experience;
Understand your rights to due process if you feel your child’s educational rights have been violated.
Kristinachew.com– Kristina Chew is a Classics professor, mother of a 12-year-old son, Charlie, who’s on the moderate to severe end of the autism spectrum, a translator and teacher of Latin and ancient Greek and a blogger, formerly at My Son Has Autism/Autismland (2006-2008), Autism Vox (2006-08) and Change.org (2008-09). She’s currently writing a book about life on the long road with Charlie.
Wrong Planet – A web community designed for individuals (and parents of those) with Autism, Asperger’s Syndrome, ADHD, PDDs, and other neurological differences. We provide a discussion forum, where members communicate with each other, an article section, with exclusive articles and how-to guides, a blogging feature, and a chatroom for real-time communication with other Aspies.
IDEA Website– This site was created to provide a “one-stop shop” for resources related to IDEA and its implementing regulations, released on August 3, 2006. It is a “living” website and will change and grow as resources and information become available. When fully implemented, the site will provide searchable versions of IDEA and the regulations, access to cross-referenced content from other laws (e.g., the No Child Left Behind Act (NCLB), the Family Education Rights and Privacy Act (FERPA), etc.), video clips on selected topics, topic briefs on selected regulations, links to OSEP’s Technical Assistance and Dissemination (TA&D) Network and a Q&A Corner where you can submit questions, and a variety of other information sources.
ORPTI – Oregon Parent Training and Information Center
Oregon PTI’s mission is to educate and support parents, families and professionals in building partnerships that meet the needs of children and youth with the full range of disabilities ages birth through twenty six. Oregon PTI provides programs and services throughout the state.
Transition Toolbox Newsletter– The Oregon Department of Education and Transition Specialist Jackie Burr invites you to receive the monthly Transition Toolbox! This brief newsletter is designed to facilitate communication and connections statewide with transition specialists, parents and students interested in issues relative to the transition of students with disabilities to college, post secondary education and employment opportunities.
Sibling Support Project – The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.We believe that disabilities, illness, and mental health issues affect the lives of all family members. Consequently, we want to increase the peer support and information opportunities for brothers and sisters of people with special needs and to increase parents’ and providers’ understanding of sibling issues.
Oregon Parental Information and Resource Center– The Oregon Parental Information and Resource Center (OR PIRC) provides resources, information, and skills to educators and parents throughout Oregon, with a focus on Hispanic and low-income families, to create meaningful school-family partnerships for youth success.
Technical Assistance Alliance for Parents Centers – Each state is home to at least one parent center. Parent centers serve families of children and young adults from birth to age 22 with all disabilities: physical, cognitive, emotional, and learning. They help families obtain appropriate education and services for their children with disabilities; work to improve education results for all children; train and inform parents and professionals on a variety of topics; resolve problems between families and schools or other agencies; and connect children with disabilities to community resources that address their needs.
Wrightslaw – Excellent resource for parents and individuals with disabilities still in school! Parents, educators, advocates, and attorneys come to Wrightslaw for accurate, reliable information about special education law, education law, and advocacy for children with disabilities. Begin your search for information in the Advocacy Libraries and Law Libraries. You will find thousands of articles, cases, and free resources about dozens of topics.
Finding and Keeping Inclusive Child Care–A Parent’s Notebook
Inclusive child care is the term used to describe a child care setting where children—both with and without a disability—are cared for together. By a disability we mean a developmental or a physical disability, an emotional/behavioral disorder, or a special health care need. The child who experiences the disability is included in all activities using whatever modifications are necessary. Providers make simple changes in the typical activities and routines to meet the needs of your child. Barriers to participation are removed whenever possible and there is an emphasis placed on the strengths, interests and experiences of all the children in care.
Inclusive child care is not a situation where the child with a disability is merely in the same room or facility with children that do not experience disabilities. Parental rights with regard to inclusive child care are a part of the Americans with Disabilities Act (ADA).
This notebook (in English and Spanish) was developed as a guide for parents with information as to options and resources for child care, to be shared with care providers as a resource notebook. The notebook can be used as a way to introduce your child. Templates are included which can be personalized with photos, articles, contacts, so as to be shared with your child care provider to help them to be a part of your child’s team. With the notebook, care providers can become familiar with children who experience disability and be better equipped to fully include all children. Parent_Notebook_on_Inclusive_Child_Care.pdf Encontrando_y_Conservando_Cuidado_Infantil_Bajo_Inclusion.pdf