by independencenw | Aug 9, 2008 | aging into adult services, asperger syndrome, autism, caregivers, cerebral palsy, customers, domestic employees, epilepsy, family support plans, independent contractors, provider organizations, providers, training, traumatic brain injury (tbi), Turning 18
Disability Compass provides information on services, products, and special health care resources for people with disabilities, their families and their supporters.
There’s a Respite Provider search and a comprehensive listing of agencies and individuals serving the disability community. We have partnered with Disability Compass in the first year of our operations and highly recommend this resource.
by independencenw | Aug 9, 2008 | caregivers, customers, domestic employees, family support plans, independent contractors, providers, Turning 18
Disaboom.com was founded by Dr. J. Glen House, a physician specializing in physical medicine and rehabilitation who is also a quadriplegic. His firsthand knowledge of the challenges faced by individuals with disabilities and those whose lives they touch has driven the Disaboom.com mission: to create the first comprehensive, evolving source of information, insight, and personal engagement for the disability community.
Check it out here.
by independencenw | Aug 9, 2008 | aging into adult services, caregivers, customers, domestic employees, independent contractors, providers, training, Turning 18
People looking for help in Portland and its surrounding communities often do not know where to begin. Locating such basic resources as food, shelter, employment, or health care may mean calling dozens of phone numbers, then struggling through a maze of agencies and services to make the right connections. 211info is built on a quarter-century history of restoring dignity to people’s lives by providing comprehensive information and referral service in this region.
Check out 211 here.
by independencenw | Aug 9, 2008 | asperger syndrome, autism, customers, domestic employees, family support plans, Turning 18
Carespace.com is the first major online community for caregivers. It’s a place for caregivers to meet, develop relationships, share stories and garner support for one another. They’re in their beta testing phase right now – you should join in and check it out.
While the community site is being tested and readied, you can check out their highly regarded blog here. Below, a snippet from a recent post.
The responses to my last post illustrate some of the many takes on the word “caregiver.” I’m grateful for all of them. Intense feelings about who we care for often supercede more general ideas around “caregiving.” So much so that any talk about grouping us together sometimes seems to detract from the individual experience.
At the same time, we know that parents of children with different illness or disabilities have a lot to share by way of information and support — even though when we do go looking for others, our search usually follows along the trail of a particular medical issue.
So I’ll be direct about the challenge of building the community for Carespace. I know that Carespace must be valuable and inviting to a mom and dad with an autistic child who want contact with others just like them. I also know that they may benefit from interaction with all sorts of moms and dads. (Not to mention that they may also be caring for an elderly relative.) But the reality today is that we haven’t established the idea of a global community of “caregivers.” It’s not yet ingrained in the overall dialog. To make this concept useful, we’ll have to discover the value of links between different “caring types.” This is something most of us will have to experience before we take it for granted.
Read more here.