Imagine a time when there were no supports for Oregonians with developmental disabilities living on their own or with their families. A time where there were extensive wait lists for group or foster care homes. A time when a family had to be in crisis in order to receive supports. A time when some people waited over a decade to receive any services at all.
Rewind two decades and you’re there.
Twenty years ago today, history was made and the face of disability services in Oregon was fundamentally changed.
The families of five Oregonians with developmental disabilities filed suit against the state of Oregon on January 14th, 2000. The lawsuit alleged that Oregon failed to offer services to adults with disabilities in the most integrated possible setting and failed to offer services with reasonable promptness. Staley v. Kitzhaber became a class action, representing thousands of people statewide. The suit opened new doors to Oregonians with disabilities, ultimately paving the way for the development of progressive support services brokerages. The suit was filed just one month before the closure of Oregon’s state institution Fairview Training Center, and a settlement was reached in September of 2000. Implementation of the settlement agreement began on July 1st, 2001.
Beyond creating in-home brokerage supports, the agreement pressed for a significant reduction of the number of people waiting for non-crisis out-of-home options through an expansion of comprehensive services for up to 300 eligible individuals statewide.
Hats off to the self-advocates, families, community members, and policymakers who had the determination, strength, and tenacity to press for historic change in the lives of Oregonians with disabilities. What an extraordinary group of visionaries!
Throughout 2020, we will celebrate and illuminate key milestones in Oregon’s disability history. In celebration of the 20 year anniversary of the Staley filing, check out this article by Bill Lynch, then-director of the Oregon Developmental Disabilities Council (now known as OCDD). Lynch’s piece, Waitlist Families Sue State was printed in the April 2000 edition of The Clarion.
Waitlist Families Sue State
By Bill Lynch of The Oregon Developmental Disabilities Council
The lawsuit alleges that the State of Oregon failed to provide services in the most integrated possible setting to adults with mental retardation and/or developmental disabilities eligible for placement in an ICF/MR (intermediate care facility for the mentally retarded) and that individuals with developmental disabilities are entitled to receive Medicaid-Funded services with reasonable promptness. The Oregon Advocacy Center (editor’s note: now Disability Rights Oregon), Legal Aid Services of Oregon and the law firm of Garvey Schubert & Barer represent the plaintiffs, including five individually named persons with disabilities and The Arc of Oregon.
In a bold move designed to get sorely needed publicly funded services, families of five Oregonians on wait lists for developmental disability services filed suit against the state. Legal assistance to the families is being provided by the Oregon Advocacy Center (OAC), Aid Services of Oregon, and the law firm Garvey, Schubert & Barer. The suit is based on federal Medicaid law which requires that Medicaid eligible individuals with developmental disabilities receive services within a reasonable period of time. The suit further states that the American with Disabilities Act (ADA) requires services to be provided in the most integrated setting.
Four of the families need residential placements for their sons and daughters who require round-the-clock care. These individuals are receiving minimal or no services. Their parents are aging and have various health problems that limit their ability to continue providing 24-hour care.
Jim Staley, one of the plaintiffs, has been waiting for services for 15 years. He has severe mental retardation and health problems. Jim is non-verbal and needs assistance in most tasks of daily living. His mother, Karen Staley, feels a sense of urgency to get him into a residential program. “We are both retired and we want to be here to see Jim transition and support the changes in his life instead of him having to deal with the crisis of our death and changes that would be forced upon him then.”
Diann Drummond needs intensive supports so she can continue to care for her daughter, Molly, also a litigant in the suit. Drummond, who is a single parent, would like to keep Molly at home as ong as possible. Molly is non-verbal and has no self care skills. Currently, Drummond is having to bear the cost for in-home respite care and a full day program in the community. After the suit was filed, state officials agreed to enter into settlement talks. The suit was put on hold for 45 days while the parties meet to negotiate an agreement. If a settlement cannot be reached, the litigants will continue forward with the lawsuit.
Photo Description: Lawsuit families make statements at a news conference. From left around table, litigant Helen Healy and her mother Susan Schrepping, litigant John Duffield, litigant Molly Drummond and her mother Diann Drummond, Michael Bailey, Brena Flota (her daughter Brandie Evans behind her is a litigant), Karen Staley and litigant Jim Staley.
This December, join us at INW for one of our many events! RSVP by emailing firstname.lastname@example.org or calling 503.546.2950.
You can check out our events on Facebook here.
There are some rule changes effective November 1, 2019 that impact Personal Support Workers (PSWs). PSWs statewide received the following information from the State of Oregon in October 2019.
Effective November 1, 2019, Personal Support Workers must report serious incidents to a supported person’s case manager (Services Coordinator or Personal Agent) immediately, but no later than one business day after an incident happens.
What kinds of things are PSWs required to report?
- Serious illness that will result in hospitalization, bodily injury, or death without treatment.
- Serious injury that risks a person’s life or permanent injury without treatment.
- Physical aggression resulting in injury to the person, PSW, or others.
- Person receives emergency medical care.
- Person is missing beyond the time frame established in their ISP.
- Person is admitted to a psychiatric hospital.
- Person attempts suicide.
- Person has an unplanned hospitalization.
- A medication error that results in harm or puts the person’s health and safety at risk.
- A safeguarding intervention or the use of safeguarding equipment included in a Positive Behavior Support Plan results in injury.
- The use of a physical restraint that is not included in a Positive Behavior Support Plan.
What must be included in the report?
- Name of the person
- Date, time, duration, type, and location of the incident
- What happened before, or leading up to, the incident
- Detailed description of the incident, including what you did
- Description of injury, if injury occurred
- Name of the PSW and any other witnesses to the incident
- Actions by the PSW or others to keep the incident from happening again
Where can I get more information?
ODDS has created a training for PSWs and other providers to learn about their responsibilities to report incidents. See more information in this transmittal: APD-IM-19-068: Provider and Partners CAM training in iLearn.
Check out this excerpt from our upcoming online version of our popular Brokerage 101 presentation: “Am I Eligible for Brokerage Services in Oregon?”
This short video explains how a person becomes eligible for brokerage services, with a brief explanation of the difference between an intellectual and developmental disability diagnosis. You’ll learn more about Portland metro area brokerages and how to get connected.
Please visit www.mybrokeragemychoice.org for more information.
Check out this excerpt from our upcoming online version of our popular Brokerage 101 informational presentation. This module is: “What Is a Personal Agent?”
A Personal Agent’s job is to connect people with intellectual and developmental disabilities with resources in the community, both paid and unpaid.
There are four primary roles of the personal agent. A PA is a navigator, so your primary link to accessing and understanding resources and services. An additional role that we play is as an advocate. So we’re support that you can rely on when you need help with others. Brokerages across the state require all of our Personal Agents to show up to every IEP meeting that they’re invited to. We have long-standing local area agreements with Vocational Rehabilitation offices to ensure a smoother set of services for you and your family.
Another essential role Personal Agents play is that of Connector. If you’re looking for a particular resource, you should give us a call and we’ll see if we know about it. One key facet of our design is that we support people with getting connected with providers. That might mean sharing resumes and information on Personal Support Workers or taking tours of provider agencies in your area. It could mean helping you interview potential supports or sharing brochures, links, and information on organizations that we believe would be potential fit. We’re told by customers that this is really is a key piece of the services that we offer.
And then, finally, there is the formal Medicaid-funded role of Case Manager. That’s where the paperwork comes in. We’re here to make sure that any of the services that are being paid for through your plan follow state and federal guidelines.
Stay tuned for additional videos on brokerage services!
Upcoming CCO (Coordinated Care Organization) changes in our area have been announced. This includes the addition of Trillium to tri-county options and the exit of Willamette Valley Community Health, currently serving Clackamas.
Please see the notice from the Oregon Health Authority below for details and informational links:
OHA held a webinar with stakeholders across the state on August 22 to share the latest information about CCO 2.0 and the organizations that will serve Oregon Health Plan members in 2020. The recording of the webinar is now available online.
Learn more about OHA’s communications plan for members with changes to their CCO choices, the next steps in the awards process, and what stakeholders and providers can do to support members during this transition.
The following materials are available for you to download and are posted on OHA’s CCO 2.0 website:
- CCO 2.0 Stakeholder webinar recording
- Webinar slides
- Audio-only podcast of the webinar recording
- CCO 2.0 Getting Ready for 2020 one-pager
- CCO 2.0 FAQ
A special message from our friends at Inspired Abilities:
Do you know about your Neighborhood Emergency Team (NET)? As soon as a neighborhood emergency occurs, a subset of Portland’s citizens don their hardhats and backpacks and head out to help! See https://portlandprepares.org/ for more information. It is great to know who they are and what they are doing and know volunteers are welcome.
Interested? If yes, you are invited to a:
Community conversation with Jeremy Van Keuren of the Portland Bureau of Emergency Management (PBEM)
6 pm – 8 pm on Thursday, September 5th
Independence Northwest 919 NE 19th Ave #275 · Portland, OR
Jeremy will help us understand the Neighborhood Emergency Teams (NET) program, citizen expectations and the workings of PBEM.
Facebook event: https://www.facebook.com/events/426002228259613/
Wait, there’s more!
After the NET volunteers complete their training curriculums, they are tested at the Portland Police Bureau Training Division’s Scenario Village. They need a real-life feeling situation, so citizen volunteers help out by being post-disaster/emergency actors. It will be an enriching afternoon where you will learn a lot simply by helping out. You and your friends and family are invited:
Volunteer Patient Actor during NET Final Field Exercises @ Scenario Village
12 noon – 4 pm on Sunday, September 15th
Portland Police Bureau: Training Division, 14912 NE Airport Way · Portland, OR
More details and RSVP: https://www.meetup.com/Inspired-Abilities/events/263887516/
We will request that some “victims” wear moulage makeup (but this will not be required – you can indicate if this is OK or not when you sign up below). You are welcome to bring friends and family, including children! To have a look at what moulage is, please visit the following link (beware, however; though they are simulated injuries, it’s still a little gory): http://portlandnet.tumblr.com/tagged/Moulage
This week marks twelve years since Independence Northwest officially opened its doors as a support services brokerage. Within the first eighteen months of operation, we grew from one employee to fifteen, enrolling 450 Oregonians with developmental disabilities into brokerage services across three counties.
Over twelve years we’ve connected with over 900 customers, 1,200 Personal Support Workers, and 177 Provider Organizations!
Huge thanks to our customers, families, advocates, board members, personal support workers, direct support professionals, provider organizations, community partners, legislators, and all of the truly extraordinary staff members we’ve had the honor to partner with the past twelve years.
There’s no place like Oregon and we’re honored and proud to be part of the fabric of this incredible community.
Today marks twenty years since Olmstead – arguably the most important civil rights decision for Americans with disabilities.
Olmstead v. L.C. was filed in 1995. The plaintiffs were two women – L.C. (Lois Curtis) and E.W. (Elaine Wilson), both of whom had been diagnosed with intellectual disabilities and had received institutional care in the state of Georgia. They sued the state, arguing for the right to community-based, not institutional, care.
The case was referred to the United States Supreme Court. On June 22nd, 1999, Justice Ruth Bader Ginsburg read the Court’s finding that “unjustified institutionalization of persons with mental disabilities we hold qualified as discrimination.” Further, the Court argued that people with disabilities have the right to receive state-funded community supports and not be unjustifiably segregated.
Following the Olmstead decision, a group of five individuals with disabilities and their families sued the state of Oregon for their right to home and community-based services. The class action lawsuit – Staley v. Kitzhaber – was settled swiftly and paved the way for the creation of brokerages and community-based supports for thousands of Oregonians. Brokerages opened statewide in 2001 and today we serve nearly eight thousand adults with disabilities in every county. In 2013, local community developmental disabilities programs began offering support services to people living in their own or family home as well.
Twenty years on, we celebrate the extraordinary vision of Oregonians who fought for – and won – their right to community-based supports.
Learn more at https://www.olmsteadrights.org/
ODDS has uploaded a series of videos related to the upcoming EVV (Electronic Visit Verification) requirement for Personal Support Workers. View all EVV videos by visiting ODDS’ YouTube channel.
As we get closer to Oregon’s planned Electronic Visit Verification roll out for Personal Support Workers statewide, ODDS has begun posting a series of Fact or Fiction Facebook posts to help community members better understand what’s happening and what to expect.
Currently, there is an EVV pilot happening in southern Oregon with one brokerage and one county (Creative Supports Inc. and Jackson County). Full implementation is expected sometime summer 2019. Information and training details are all forthcoming.
If you need a refresher, here’s some details from Oregon Developmental Disabilities Services:
“EVV is part of a federal law that was passed by Congress in 2016. The 21st Century Cures Act requires states to verify the delivery of Medicaid-funded Attendant or Personal Care services in real time (at the time the service is occurring) from providers. The EVV system must electronically capture the following information at the time the service is occurring:
- Type of service performed
- Individual receiving the service
- Date of the service
- Location of the service
- Individual providing the service
- Time the service begins and ends
EVV will be required of all PSWs in Oregon by 2019. The 21st Century Cures Act also recommends that states seek stakeholder input from family caregivers, PSWs, and individuals receiving services along with other stakeholders when developing their EVV systems. See PDF presentation for more information.”
Be sure to follow the eXPRS Facebook page and bookmark the ODDS Electronic Visit Verification Project web page to stay on top of the latest developments.
Check out the slideshow below with a few of the True or False posts from the eXPRS Facebook page.
eXPRS EVV True or False
eXPRS EVV True or False
eXPRS EVV True or False
eXPRS EVV True or False
eXPRS EVV True or False
eXPRS EVV True or False
The following message was emailed to Provider Organization contacts by the six Portland metro area brokerages on 02/02/2019.
IMPORTANT NOTICE TO OREGON PROVIDER ORGANIZATIONS
RE: APD-PT-19-003* Policy Transmittal: Agency Billing Activities Effective 2/1/2019
As of Friday, 2/1/19, most eXPRS submissions by provider organizations will automatically be paid by ODDS without case management review. (Service codes OR539, OR570, and OR310 are excluded from this change.) The Oregon Office of Developmental Disabilities Services (ODDS) will conduct post-payment reviews of provider organization documentation. This change may expedite payment to some provider organizations, but it does not change documentation requirements.
Oregon Administrative Rule 411-415-0090 requires Case Management Entities (both CDDPs/counties and Brokerages) to conduct extensive and specific monitoring of services including but not limited to:
- Ensuring all services provided align with those authorized in the ISP
- Confirming support and progress toward goals
- Confirming individual choice is being honored
The review of provider organization progress notes is an invaluable tool in meeting these monitoring mandates. For this reason, the six Portland metro-area brokerages will continue to expect to receive progress notes for all services delivered. Per the state’s transmittal, these notes must include:
- Customer name
- Provider of service
- Dates of service (the date range is sufficient)
- Units of service provided (total number of units for the period is sufficient)
- A progress note summarizing the service provided and progress toward goals (weekly or monthly summaries are perfectly acceptable)
As guidance, please review the following from the Indirect Case Management Monitoring Worker’s Guide:
Adequate provider agency progress notes focus on describing the supports a person received to achieve the desired outcome. These include the ADL, IADL, medical and behavioral supports identified on the ISP as being needed. The notes should focus on the specific activities (i.e. “visited a museum”) only insofar as they are important to achieving the desired outcomes as described in the ISP. Simply stating the name of the service associated with the procedure code is not sufficient (i.e. “Provided Day Support Activities” is not an adequate progress note to support a claim by the agency or for the purposes of indirect monitoring.) An adequate note will allow a SC/PA to determine if the services are consistent with those authorized in the ISP. Provider agency progress notes are also a place for the provider to convey observations about possible changes in support needs, challenging behaviors and a wide variety of topics. These reported observations should be reviewed by the SC/PA for their potential impact on risk identification, new person-centered information, and service planning. The SC/PA’s supporting progress note should reflect their assessment of the observations and the actions they will take in response, if any.
This excerpt demonstrates that progress notes are an important tool in monitoring supports and communicating changes in an individual’s needs and choices. As such, we request that providers submit progress notes for all supports no later than one month after the provision of services. For example, notes for services provided in February will be due by the end of March.
In compliance with the transmittal, we will be notifying ODDS when we do not receive progress notes within the 30-day window.
We anticipate that issues with overlapping billings will likely continue. As CDDPs/counties Brokerages are no longer part of the invoicing and payment processes, providers will need to seek resolution of these issues from ODDS.
Finally, we trust that our provider organization partners share our values with regard to continuing to offer customers the authority to review and authorize their services via signature. We will have one-on-one conversations with each of our customers regarding their options, and plan to solicit broad customer and family input on how to ensure choice continues to be offered and honored.
Thank you for your continued partnership and your service to our shared customer base as we work together through this next transition.
A Special Announcement from Ann Fullerton, Professor Emeritus of Special Education, Portland State University
Do you know an adult with developmental disabilities that wants to go to college? The Career & Community Studies Certificate at Portland State University provides a four year inclusive college and employment program for individuals with intellectual disabilities in Oregon.
- Person-centered planning and self-directed goal setting
- A unique weekly schedule including academic courses, employment and campus involvement
- Students learn to manage their own schedule and use supports they need
- Part-time employment on or off campus each term
- Enrollment in 1-2 college courses each term with other PSU students
- Choose and participate in PSU’s recreational, social and student organizations
- Academic coaches, peer navigators and CCS advisors support students to succeed in college
But how could they afford it? We have adult students in CCS that are financially independent, receiving SSI and working part time while they attend college. They are eligible for financial aid to go to college. Also, because our students are working in competitive wage integrated employment, they are eligible for an Individual Development Account (IDA). For dollar they earn and place in their IDA account they receive a $3 match up to a total of $12,000 for their education. Lastly, Charles Taylor of Mountain Crest Counseling Services has created our first scholarship for CCS students.
How can we learn more? Attend INFO NIGHT Jan 17th. 6 pm Smith Memorial Union 1825 SW Broadway Portland, OR 97201 ROOM 330
Email us at email@example.com. We would love to talk to you. We can respond via email, phone call, or schedule an appointment to visit us. Review information on our website: https://www.pdx.edu/career-and-community-studies/
What is the deadline to apply? Application Deadline March 2, 2019 (We provide support to apply!)
By Ann Sullivan
When my son Cody Sullivan (AKA Coach Cody), was born with Down syndrome, I knew he would make a great difference in the world. This has rung true for the past twenty-two years, culminating on April 28th, 2018 when he became the first person with Down syndrome to graduate from higher education.
Cody was included in general education from kindergarten through grade 12. He wasn’t shoved into a secluded classroom where they took trips to the park to pick up litter or wipe down tables in the cafeteria. Cody learned alongside his peers – and just by being included – he taught people that having a disability isn’t scary.
When he was a high school senior, Cody’s friends were delightfully sharing where they were going to college. This inspired him to seek the same. Concordia University Portland agreed to have Cody attend classes and work toward earning a certificate of achievement in elementary education. We have been part of the West Coast Think College Coalition, which is focused on creating opportunities for individuals with intellectual disabilities to attend higher education.
On April 28th, graduation day at Concordia University, Cody was the first person with Down syndrome in Oregon to cross the stage and receive his certificate. As he crossed, his many friends erupted in love and joy with a standing ovation.
Today, Cody works as a Teacher’s Aide at a local charter school.
On December 11th, 2018, the Oregon Office of Developmental Disabilities Services sent the following message to Personal Support Workers statewide:
This message is to notify Personal Support Workers about the latest news with Electronic Visit Verification (EVV).
A new federal law requires that states implement an electronic way for verifying attendant care services, called Electronic Visit Verification (EVV).
EVV is required for all Medicaid personal care services and home health services that require an in-home visit by a provider.
EVV is a new way to collect information in eXPRS. It will record these federally-required items in real time:
- Personal Support Worker (PSW) name
- Person receiving services
- Type of service
- Date of the service
- Time the service begins and ends
- Location of the service
The Office of Developmental Disabilities Services (ODDS) will be making changes to eXPRS that will allow it to be used for EVV.
A pilot for EVV in Oregon will take place in early 2019. EVV will be required of all PSWs in Oregon by 2019. Information will be sent to PSWs regarding full implementation in spring 2019.
EVV will work on smart phones and tablets that can access the eXPRS website. eXPRS will be changed to have a website made especially for phones and tablets. There will be trainings to help PSWs learn how to use this new part of eXPRS.
For PSWs who do not have a smart phone or tablet with Internet access, there will be an exception process. You will get more information about this before EVV is required. “
For more information and to subscribe to get the latest updates:
“It’s kind of amazing. One year you’re going this way, then the next you’re in a completely different place.”
Twenty year old Jamison Cowling knows well of what he speaks. 2017 was a deeply challenging year for the Estacada resident. Jami, who experiences autism, has spent the last year and a half adjusting to life after a Traumatic Brain Injury (TBI.)
In March of 2017, he was involved in a snow-tubing accident that left him with a broken neck, broken back, fractured skull, and brain hemorrhage. The months that followed were painful and difficult, requiring around the clock care as he slowly learned to walk and communicate again. He found comfort in family support, friends, and his faith.
Says mother Beki, “When I first received the call letting us know he had been injured and was being loaded into an ambulance, my world tilted for a minute… I struggled to breathe. And then our whole family sort of went on pause for months and months while we helped Jami deal with his TBI and we advocated for all the supports he needed.”
In the early days following his discharge from the hospital, Jami slept twenty-two hours a day at times, requiring around the clock supports. His parents balanced helping Jami recover with raising his four younger siblings. “It was so hard for Jami, but he was strong,” says Beki. “A brain injury changes everything.”
He underwent extensive occupational, speech, and neurofeedback therapy and credits the exceptional supports he received from Dr. Swingen, a chiropractic functional neurologist in SW Portland, with crafting an individualized physical therapy plan that eventually got him back on his feet.
Building a Circle of Support
The life he leads today is light years away from where things were for him and his family just eighteen months ago. Soon after the accident, he enrolled as a customer of Independence Northwest support services brokerage. “Options matter,” says Beki. “The whole last year has been about creating the right Team Jami.”
Team Jami is made up of friends, family members, and paid home and community-based supports. By combining supports from his brokerage Personal Agent, medical professionals, a behavior specialist, and Personal Support Workers to help him increase his independent living skills, Jami has been able to build a firm foundation for his new life.
Success rarely comes in a straight line. As soon as he was feeling well and stable enough, Jami set his sights on employment. His initial attempt moving into the workforce wasn’t without its challenges. “I had a job and it wasn’t good for me,” he says, referring to a position he held about a year after the accident. His brain was still healing and he needed a low stress, adaptive environment. People in his circle noticed he was starting to struggle and became concerned things might be moving too swiftly. “We needed something different, something that would give me the space to think and do a good job.”
Jami’s Brokerage Personal Agent Andrea Ochsner brainstormed with the family on possible options to better support him in future job environments. She connected them with a Behavior Specialist by the name of Gabrielle Taylor, who soon joined the circle of support. Gabrielle worked with Jami to perform a functional behavior assessment, laying the groundwork for communication strategies at home and in future employment settings. “She really helped me,” he says.
Concurrently, Vocational Rehabilitation Counselor Mark Foster assisted Jami with developing an employment plan that focused on his strengths and capacities, bringing provider organization Adult Learning Systems of Oregon (ALSO) on board. ALSO helped Jami land a volunteer position with Store to Door, a nonprofit program where Jami grocery shopped on behalf of seniors and people with physical disabilities.
“Communication is everything and it furthers what Jami is able to do… (Personal Agent) Andrea has facilitated communication amazingly! She is very skilled at gathering the different members of Team Jami together, either by email or in-person meetings, and then diplomatically addresses sensitive issues in ways that put everyone at ease. When all of (us) are on the same page, then Jami wins. He gets clear, consistent, and congruent supports.”
Preparation, Connectivity, and Opportunity
In the fall of 2018, everything converged. Before he knew it, Jami was preparing for an interview with Fred Meyer.
“It shocked them I got this job so quick,” says Jami. “It was really fast.” He says the experience he gained as a volunteer at Store to Door helped pave the way for the position.
Today, Jami is working five days a week at a Fred Meyer in Clackamas County, a member of their Click List team. He reviews online grocery orders, shops the store for the items, and assists customers when they come to pick up their purchases.
“There’s a lot of variety in the job,” he says. “I have a lot less social anxiety. This weekend was Veterans Day and I thanked two veterans for their service. One served in the Vietnam War and really appreciated being thanked.”
Watching her son talk about his success, Beki beams with pride.
“When I think of all that Jami and our family has gone through in the last eighteen months, I am just so profoundly filled with gratitude that Jami is alive and breathing and walking and talking… Now we are seeing the fruits of all the efforts that everyone has made supporting our son and it is truly beautiful. We are getting our sweet Jami back and he is even better than before.”
Join the Oregon Department of Human Services on Monday October 15th from 1:30pm – 3:00pm either online or in person! DHS Director Fariborz Pakseresht and the DHS Executive Team will present brief program and legislative updates followed by a question-and-answer period.
Join in person, by phone, through live streaming or follow along on Facebook or Twitter.
- When: Monday, October 15, 2018, 1:30 – 3:00 p.m.
- Where: Barbara Roberts Human Services Building, Room 137 500 Summer Street NE in Salem
- How: Conference call 1-866-233-3842; Access Code: 455584#Participate in the conversation by using #ORDHSforum on Twitter
Questions or accommodation requests related to a disability, please contact Communications.DHS@state.or.us. A good faith effort will be made to fulfill requests.
Please forward this message to interested stakeholders and partners.
Note: Deadline for in-person RSVP is Thursday, October 11th.
Read the full announcement here.
Portland State University’s Career & Community Studies: Inclusive College and Employment
By Ann Fullerton
High school students with intellectual disability typically attend public school with their same age peers. But what happens at graduation? Historically, those peers go on to college or vocational training or work but the student with ID may go home with few options to continue their growth toward the adult life they want. Until recently, individuals with ID were excluded from attending college and sometimes from work in gainful integrated employment.
Recent national and Oregon legislation has removed barriers and established funding to develop inclusive college and employment experiences for students with ID. The U.S. Department of Education awarded funds to 44 universities nationwide, including Portland State University to lead the way in the creation of inclusive college and career experiences for students with ID. Research indicates that graduates of these inclusive college/employment certificate programs are achieving gainful integrated employment and higher wages (www.thinkcollege.net).
One of the best ways to envision these is to view this 4 minute movie trailer or 25 minute film: http://www.thinkcollege.net/rethinking-college And to read about college students with ID here: http://www.thinkcollege.net/publications/think-college-stories
Portland State University (PSU) has created the first four year inclusive college and employment program for individuals with intellectual disabilities in Oregon. The mission of Career & Community Studies (CCS) is to “…. establish a fully inclusive college experience for students with intellectual disabilities (ID) with the expectation that matriculated students will have access and opportunity to the same services, programs and courses as other PSU students. Each student’s college experience will be individually designed to support inclusive academic and career experiences leading to meaningful, integrated employment and self determination….”
You may know this project as “Think College Inclusion Oregon,” the grant that supports this work. PSU’s project is part of a larger national effort described here: https://thinkcollege.net/
How It Works
CCS students establish their career goals through a person centered planning process and then work in competitive wage integrated employment on or off campus. Advisors help student find college courses that add to their preparation for their career area. In years 3 and 4 students move into off campus employment that aligns with their career interests.
Students attend college classes on their own. They receive academic support through an Individualized Learning Plan and academic coaching frorn other PSU students. They explore and engage in campus life with a peer navigator if they wish. A goal of PSU is for all graduates to become engaged citizens in the community and this goal is enacted through community based learning in courses and through 150+ student – run organizations.
PSU students in CCS are thriving and PSU staff, faculty, students and employers on and off campus are committed partners in this exciting endeavor.
New Job Opportunity within the Program
PSU – CCS is currently seeking applicants for the CCS Employment and Campus Inclusion Coordinator. This position supports student employment throughout the 4-year college and employment experience. We are looking for applicants who value employment for all and have extensive experience and demonstrated skills in the areas of job development, job coaching, other job supports. An excerpt of description is below…
The purpose of this Advisor/Counselor position is to support the inclusion of college students with intellectual disabilities in employment experiences and campus involvement throughout their 4-year Career and Community Studies Certificate (CCS) experience at Portland State University. This position will focus on developing integrated, paid employment for all students starting in year one within typical jobs opportunities on campus and in the community. CCS students will need to transition to career-focused off-campus jobs prior to completing their 4th year of college.
Specific job responsibilities will include providing individualized supports with CCS students (e.g., weekly advising, job development, providing job supports, implementing person-centered planning processes with students and their teams, planning and supporting the transition to campus housing), coordinating supports for employment and campus inclusion (e.g., support campus employers, coordinate job coaching supports, facilitate inclusion into campus housing), maintaining internal and external partnerships (e.g., facilitating the monthly CCS Employment team meetings with employment partners, collaborate with campus partners), and supporting the CCS team to implement the program (e.g., program admissions, on-boarding new students, assisting with planned events with students and families, program evaluation tasks). This position is currently grant funded through 2020. We are optimistic that there will be continued funding for this position after the grant ends.
Here is a link to the position announcement and application:
Other colleges in Oregon are also moving toward creating more inclusive college and employment programs across the state. For the right individual, this is a unique opportunity to be a part of ground breaking work.
After reading the position announcement, contact Susan Bert, Co-Director of Career & Community if you have with questions about the position firstname.lastname@example.org.
ODDS Statewide Employment First Coordinator Acacia McGuire Anderson writes:
The Individuals with Disabilities Education Act (IDEA) states that transition planning must begin at age 16. However, transition planning may begin as early as 14 years of age. The sooner we start transition planning, the better for the young person so they can connect to ODDS (Office of Developmental Disabilities Services) and VR (Vocational Rehabilitation) services and begin the process of exploring career options and skills needed to be successful in the workforce.
In Oregon, we have Transition Network Facilitators (TNFs) who provide outreach, technical assistance, and training opportunities for educators, individuals and families, and collaborate with VR counselors, providers and DD case management entities (such as Brokerages and CDDPs/counties). The TNFs are also launching a podcast series in January aimed at providing information and resources to educators, individuals and families throughout Oregon.
A list of the ODDS regional specialists, VR I/DD counselors, TNFs and Pre-ETS Specialists is on the Employment First Training web page: https://www.oregon.gov/DHS/EMPLOYMENT/EMPLOYMENT-FIRST/Documents/VR-ODE-ODDS-Regional-Employment-Specialists.pdf
There are upcoming trainings where educators, as well as VR staff and DD providers and case managers, can learn more about transition planning. These include the Oregon Statewide Transition Conference, happening March 7-8, 2019, in Eugene. In addition, ODE, ODDS and VR collaborate to put on regional trainings throughout the state.
If you have any questions regarding transition planning beginning as early as age 14, or any questions regarding transition services in general, email: email@example.com. Thank you for all your efforts as we strive to support people with I/DD to live and work in their communities.
This article originally appeared in the Oregon Clarion in October of 2001, written by then-editor Diann Drummond. Her daughter, Molly Drummond, is one of the five plaintiffs of Staley v. Kitzhaber, the class action lawsuit responsible for creating Oregon’s progressive self-directed brokerage system, which currently serves nearly 8,000 adults with intellectual and developmental disabilities.
This is a tale of one of those dreaded supermarket encounters talked about among parents of children with disabilities. The sidelong looks, the stares, and the whispers feel like a stab in the heart.
My daughter Molly is very small for a 23 year-old and her spine is sharply curved over to one side. When we are grocery shopping, being pushed around the store in the basket is her favorite way to go. She giggles and talks her mysterious language while the food is piled all around her. Admittedly, we make an interesting sight.
Sometimes we pass someone who smiles warmly or says hello, and I think, “There is a fine person.”
Most of the time we go about our business, get our food, and head for home, eager to break into the tortilla chips or gummy bears. But on one particular day, that isn’t the way things went.
We had stopped by our local market for a quick shopping trip. This is the place where the clerks chat with us, and we often run into neighborhood friends.
I made my way down the aisles with Molly trailing behind. For some reason that day, Molly wasn’t into basket-riding. Just as I was squeezing the cantaloupes in the produce section, a herd of boys, maybe around kindergarten or early school-age, thundered up. The leader of the little ruffians exclaimed loudly, “Hey, look at her – she’s weird!”
I could see their mother close by, not phased in the least by what I considered to be a serious affront.
That’s when the mother bear came out in me. I scooped Molly protectively toward me. I felt like growling but hurried down the aisle instead. I headed to the other side of the store, thinking we could quickly grab our groceries and head for the safety of home.
However, no sooner had we rounded another corner when we ran into them again. There was a repeat of the earlier scene and that word “weird” again. Mother bear was ready to charge.
I don’t usually admonish other people’s children, but I turned a stern eye on them and said, “Boys, don’t be cruel.”
They stopped and huddled together, wide-eyed and slack-jawed. That’s when I saw mother bear number two streak forward and gather her offspring close. She said in a steely voice, “I will speak to them.” I spoke back with an equally steely voice, “I wish you would.” The face-off!
After a few moments, we turned in separate directions, herding our cubs along, when mother bear number two offered, “They’ve never seen a handicapped person before.”
I looked at the boys, then at their mother, and then back at the boys. I paused. “Would you like to meet Molly?” I asked. They cautiously sidled forward. “This is Molly. She has a disability and she was born with a crooked back. She doesn’t talk, but she can understand what you say. She goes to school.”
One of the four said “hi” to Molly and asked, “Does she go to school every day?”
I replied, “Yes, she rides the bus every day.”
Another offered, “I’m five.”
A few social pleasantries and we were on our way. I felt a bit sheepish, wondering if I’d been too hard on the boys who were pretty young. But the olive branch had been extended, and at least I didn’t swat it away with my paws.
We finished gathering our groceries, went through the checkout stand, and were going out the door when I heard someone call, “Bye.” I turned to see mom and her four boys smiling and waving. I smiled and waived back. Molly and I headed for the car. She was her usual happy self, apparently unconcerned with the incident. I was relieved that the confrontation ended the way it did.
I let out a tired sigh.
Time for mother bear and her cub to head back to their den and hibernate for a while.
The Oregon Clarion Volume 7, Number 3
The Oregon Office of Developmental Disabilities has developed a single assessment tool to be used in determining the support needs of children and adults with Intellectual and Developmental Disabilities (I/DD). Brokerages and CDDPs have just begun using the new assessment, known as the ONA (Oregon Needs Assessment). The ONA will roll out between now and June 30th, 2019.
To help you understand what’s happening and what to expect, we have developed a new ONA (Oregon Needs Assessment page on our website. The page includes helpful resources, links, frequently asked questions, and more. Check it out by clicking here.
This week’s Provider Spotlight is Exceed Enterprises in Milwaukie. Exceed works to with adults living with disabilities to find and retain both customized and competitive employment in the Pacific Northwest area. Because they have been around for several decades, they have the experience and expertise needed to make community employment a reality for job seekers all over the Metro Area. Check out their Facebook page here.
Meet EQC Home Care! In addition to housekeeping, personal care, and meal support, they also have nursing services for end of life care, medication assistance, and 24 hour availability for respite. Nurses are available for community outings and they serve children as well. EQC is this week’s provider spotlight. Details here: http://www.eqchomecare.com
This week’s Provider Spotlight is on Empowerment Services, LLC. ES delivers individualized employment alternatives and life-skills training to teenagers and adults with developmental disabilities. Given the unique behavioral and sensory needs of everyone they serve, support plans are highly customized.
Be sure to check them out on the web at www.empowermentservicesllc.org
Edwards Center remains one of the best kept secrets in Washington County. Founded in 1972 by a group of parents, this agency puts family front and center. This week’s provider spotlight is on the Aloha Community Center where Edwards takes community inclusion to the next level. A quarterly online catalog is available full of classes and outings for people of all ages and abilities. Check them out at https://www.facebook.com/alohacommunitycenter/