by independencenw | Jul 1, 2013 | advocacy, clackamas county, community connections, customers, history, multnomah county, resource, washington county
Six years ago today Independence Northwest became a fully-funded Oregon support services brokerage. Thank you to our founding and current board of directors, our many stellar staff members past and present, CDDP and provider partners, fellow brokerages, and customers and families for your belief, support, guidance, and partnership these past six years.
We are proud to be part of Oregon’s I/DD community and look forward to many more years with you!
by independencenw | Jun 20, 2013 | advocacy
On June 12th, 2013, several brokerage directors met with Erinn Kelley-Siel (Director of the Department of Human Services), Trish Baxter (Chief Operating Officer for Aging and Disability Programs) and Patrice Botsford (Director of the Oregon Office of Developmental Disabilities Services) to discuss concerns related to planned changes to services for brokerage customers and individuals throughout the system. During the meeting, we shared a formal position document (see below*) outlining concerns, questions, and recommendations. Given the significant amount of systems change occurring in Oregon right now, the paper touched only on high level, immediate issues.
Within a week of that meeting, Erinn, Trish, and Patrice followed up in writing on each of our concerns and their responses are included below. Some questions have now been answered and others are still in process. We appreciate the Department’s willingness to meet with us, their openness to feedback and input from the field and we look forward to regular, ongoing engagement on forthcoming changes and implementation strategies.
________________________________
*Positions and Recommendations on the K Plan, Its Implementation, and Additional Department-mandated Changes (June 2013)
OSSA (Oregon Support Services Association) is a non-profit organization comprising the thirteen support services brokerages in Oregon. Collectively, the association represents over 7,000 adults with intellectual and/or developmental disabilities (I/DD) who live independently throughout Oregon’s 36 counties. Brokerages have been in operation since 2001 and OSSA since 2010.
We envision a world in which all people live the life they choose in communities where they are valued, respected, and honored. In this world, individual strengths are celebrated; high quality supports are ample and readily available; labels are absent; and self determination is universal. This vision is realized from neighbor to legislator.
Present Situation: Community First Choice State Plan (K Plan) Implementation
In June of 2013, responding to budgetary shortfalls and weak findings from a statewide CMS audit, the Oregon Office on Developmental Disabilities (ODDS) sent its Community First Choice State Plan Option K (K Plan) application to the federal government for approval. The K Plan, if approved, will bring a 6% increase in federal match funds to Oregon. ODDS has formed workgroups and brokerage representatives have participated over the last month and a half.
This paper is an effort to capture the support services brokerage perspective in a publicly available set of thoughts, concerns, and issues surrounding the K Plan and its implementation in Oregon.
OSSA supports many of the aims of implementing the K Plan including:
- Bringing additional federal funding into our state to preserve services for Oregonians with support needs
- Developing options for fluidity and portability across service elements
- Expanding of choice to the I/DD community
Additionally, OSSA has specific concerns about current implementation strategies including:
- Ensuring the principles of self-determination are at the foundation of implementation
- Offering true choice in Targeted Case Management across the system
- Lack of extensive testing of the Functional Needs Assessment prior to implementation and the potential repercussions on populations (e.g. people with autism) whose needs it may fail to capture
- Quality assurance review and customer/brokerage authorization of services prior to provider payment
- Significant loss of flexibility caused by changing from annual benefit levels to monthly fixed allotments
- Long term fiscal sustainability
Ensuring the Principles of Self-determination are at the Foundation of Implementation
In developing a new service delivery model, it is important to validate the importance of self-determination as the cornerstone of Support Services, and not just a salvaged component of yesterday’s service delivery model. We support a model that honors the aspirations of the individuals while adhering to the funding criteria that brings needed federal matching funds to Oregon’s Medicaid funded programs.
We believe that there is room for both. A person centered service delivery model based upon the principles of self-determination relying upon a Functional Needs Assessment to determine the disability related supports that are available in pursuit of life goals is a workable model.
Recommendation: We recommend that ODDS continue to commit to retaining the principles of self-determination as defined in statute and rule to drive planning and implementation of the Community First Choice State Plan Option K. We recommend that the Functional Needs Assessment exist in a supportive role to determine those disability-related expenditures available in support of self-determined life goals.
DHS Response: The Department agrees. Person-centered planning and self-determination are foundations of the I/DD system. Although the functional needs assessment is required, plans will continue to be developed in support of an individual’s life goals with the functional needs assessment driving the ADL and IADL supports necessary to support the individual in achievement of their goals.
True Choice in Targeted Case Management Across the System
In the current system, CDDPs provide Targeted Case Management (TCM) to children and adults receiving comprehensive care. In addition, they serve a small number of people receiving In-Home Comprehensive Services. Brokerages currently provide TCM exclusively to adults with I/DD who live independently in the community (support services).
Over the past couple of months, ODDS representatives have stated that CMS is “mandating choice in who provides TCM” under the K Plan. We are told that, per CMS mandate, customers must now be offered the choice of a CDDP case manager OR brokerage Personal Agent for support services.
When reviewing the system as described we find the decision to offer choice only in one area (support services) puzzling and inconsistent. As you see below, choice is decidedly limited to just one subset of the recipient base – the program recipients brokerages currently serve. Recipients in all other service elements continue to have no choice in who provides TCM.
|
Brokerage Provides TCM |
CDDP Provides TCM |
| Support Services |
●
|
●
|
| In Home Comprehensive |
|
●
|
| Residential |
|
●
|
| Supported Living |
|
●
|
| “Not in Service” Case Management |
|
●
|
| Child Case Management |
|
●
|
| Family Support |
|
●
|
The vast majority of brokerage customers currently have at least two different entities providing Targeted Case Management to choose from. Many have four or five choices. Customers in every other service delivery program in the state currently have no choice. The proposed change marginally increases choice for a small percentage of brokerage customers while continuing to leave half or more of Oregon’s I/DD population with no choice whatsoever.
Further, we are concerned about conflict of interest free choice counseling under the new proposal. We understand that there have been conversations about third party choice counsel for people entering adult services. While we welcome any attempted neutral approach to assuring appropriate counsel, we are concerned about the viability of neutrality in a system that offers choice only to a select group.
An example: We think this model’s flaws are particularly evident during the period when recipients transition from child to adult services. Turning 18 is a time of enormous stress and change for an individual and his/her family. They are dealing with becoming their own decision-maker, an independent signer and they no longer have a de facto guardian. Further, they are applying for Social Security, updating their Medicaid status and possibly undergoing additional eligibility testing related to their I/DD diagnosis. Additional changes, particularly changing case managers, during such a period of upheaval seems an unlikely preference for most families. Real choice should be offered from the beginning so that people have time to form and maintain their relationship with their case manager, be they from the CDDP or the brokerage.
Recommendation: We recommend that ODDS provide universal choice by permitting brokerages to provide targeted case management in all service elements serving people with I/DD (including children). In the absence of full choice, we believe ODDS should create a distinction between CDDP and brokerage case management by assigning facility-based services to CDDPs and community-based adult services to brokerages. Our recommendation is consistent with the Oregon IDD Coalition’s recommendation on this topic.
DHS Response: There is a statutory change that would be required in order to allow brokerages to serve children under the age of 18. However, as noted in the revisions to the chart (below), brokerages will be allowed to serve In-Home Comprehensive and “Not in Service” Case Management individuals. Residential and Supported Living services are to be phased in at a later date. It is the intent of ODDS that brokerages will be allowed to serve these populations within the next 12 months. Full choice of service providers (CDDP or Brokerage) will be given to individuals in all areas, with the exception of services related to children. This is a statutory change that can be explored during a future legislative session if so desired.
ODDS has added updates to the chart. Please see below:
| |
Brokerage Provides TCM |
CDDP Provides TCM |
| Support Services |
●
|
●
|
| In Home Comprehensive |
7/1/13
|
●
|
| Residential |
7/1/14
|
●
|
| Supported Living |
7/1/14
|
●
|
| “Not in Service” Case Management |
7/1/13
|
●
|
| Child Case Management |
Planned, pending statute change
|
●
|
| Family Support |
Planned, pending statute change
|
●
|
Functional Needs Assessment Development and Testing
ODDS representatives have been developing a new Functional Needs Assessment tool (FNA). Under the K Plan, services and supports are based upon a tool designed to determine a number of hours of service. Because this is a Medicaid requirement, it has been placed front and center as the driver of services. While we respect the necessity of the FNA, we believe the drivers of services should continue to be self-determination and the individual’s aspirations for his or her own life.
A person centered planning process based upon self determination is first and fundamental. From there, the FNA acts as the funding mechanism enabling the provision of disability-related supports to meet the aspirational goals of the individual, not the other way around.
We believe that an assessment tool intended to be placed at the center of all individual service decisions should be supported by comprehensive testing and computer modeling prior to implementation. The FNA has not yet been subjected to either. Data and real-word application should be established in advance of placing thousands of individual lives at the mercy of any assessment mechanism. We have particularly strong concerns that some needs related to autism, behavioral and psychosexual disorders in particular will not be effectively articulated in the FNA form. Testing will allow for thoughtful examination of the value the FNA may bring to our Employment First and Executive Order requirements.
Our understanding is that the FNA will not be linked to rates on the comprehensive services (24/7) side during initial phases of implementation. We support this approach and ask that similar caution be taken on the support services side. Such an approach allows for testing and modification without disrupting the lives of recipients or the businesses of those who serve and support them.
A great many of our customers have exactly the same needs as those in 24/7 settings such as group homes and foster care homes. While the average brokerage customer has a budget of $14,000 per year, a full 7% of our customer base has been assessed through the Base Supplement Criteria Inventory process. They receive an enhanced budget between $20,000 and $24,500 per year due to extensive needs with personal care, caregiver capacity, behavioral support needs, and other high level support with activities of daily living.
Recommendation: We recommend a minimum 20% sampling of brokerage customers be tested to prior to formal implementation to determine a baseline from which to budget and consider future options, as well as to address employment and specific disability support issues. It seems the legislature and other administrative staff would require something of this sort in order to budget appropriately for Oregon’s future. There are very real fiscal and human repercussions at play here. We will partner in any way possible to help Oregon achieve this aim.
DHS Response: The department agrees that the new functional needs assessment is going to need extensive field testing and we appreciate the offer of brokerages to assist in this effort. We anticipate having a draft ready for some testing as early as the week of June 24. Testing the tool with individuals that we already know will be of great benefit. Initially the new assessment will be used for new people coming into service, and for existing individuals as their assessment renewal is due. This needs to begin on July 1, assuming CMS approval for a July 1 effective date, however, we know that the tool will be a work in progress and will need modifications as we gain experience in utilizing the tool with the I/DD population.
Pre-Payment Review and Quality Assurance
Since brokerages first began operation in 2001, we have always practiced high standards of quality assurance by reviewing direct services documentation prior to payment to qualified providers. Every single invoice, timesheet or bill is reviewed by the Personal Agent prior to payment. In order for us to move forward with payment, we must confirm:
Customer (or legal designee) signature confirming services
- Progress notes confirming Medicaid-allowable services and how they relate back to the individual’s disability-related support need and person-centered goal
- Units, rates, and dates that fall within the terms of the service agreement between the customer and the provider
The review of these invoices offers an immediate opportunity for education, feedback and correction when necessary. We currently employ a proactive approach and work with the customer and provider to assure CMS and state mandates are met. Not a single invoice, timesheet or vendor bill is paid in any of our thirteen organizations without thorough review and vetting.
This process permits us to do everything from fixing a basic pro-ration error to identifying fraud. Close review of these documents has led to protective service investigations, sanctioning of fraudulent providers, and the immediate intervention to address health and safety concerns.
Currently, these strong quality assurance mechanisms are at risk for a major change. As ODDS moves the brokerage plan of care into its payment system (eXPRS) there has been serious consideration given to permitting providers to go directly into the system to claim payment, bypassing essential quality assurance review and oversight. We have been told that we could do a “statistical sampling every three months or so” and follow up on errors after the fact.
We strongly object to a pay and chase system such as this and believe it’s at odds with CMS’ general shift over the past several years. By reviewing these documents ahead of time, we’re playing a proactive role not a reactive one. We believe this approach is consistent with the Department’s core values and practices.
Recommendation: As fellow custodians of public funds and strong believers of fiscal accountability, we urge ODDS to continue to permit brokerages to provide quality review on 100% of invoices, timesheets and bills received prior to payment to providers through the state’s payment system. The current processes within the brokerages have been proven to be principled and effective in financial management.
DHS Response: The department has already revisited this decision and will be building functionality into the eXPRS system to allow for review and approval by brokerage staff prior to payment being issued. Brokerages will be able to determine their business process for accomplishing this task, including requiring customer authorization, invoices, etc. No payments will be issued without brokerage staff review and approval.
Monthly Fixed Allotments Versus Annual Benefits
In the current system, when a brokerage customer enters services, he/she has an annual benefit amount of around $14,000. She can purchase supports when she likes, as required based on disability-related needs. This sometimes means she needs zero services for X months and then needs a significant number of services during, say, the summer. The current system allows for her to utilize her services when she needs them based on current availability of resources both paid and not paid.
Under the K Plan, there’s no such thing as an annual benefit cap. The Functional Needs Assessment (FNA) determines how many hours a person is eligible for per month. If you don’t use it, you lose it. For twelve years, brokerage customers have been operating under the annual benefit and have enjoyed the flexibility to meet real-life needs such a system allowed. In our discussions with customers and family members, this is a primary area of concern right now.
Recommendation: We understand that the monthly versus annual budgeting model is an Oregon design decision and not something mandated by CMS under the K Plan. We recommend maintaining utmost flexibility for those receiving services and therefore a customer budget developed on an annual basis. Programs should be crafted to fit the needs of people. When we attempt the inverse, the system can’t meet needs in the moment and small issues become compounded. People lose options and control.
DHS Response: With the implementation of the “K” State Plan Option, individuals will receive the supports that they need each month. In essence, the idea of monthly or annual budgets goes away – individuals will be authorized for services determined to be necessary through the functional needs and service planning processes. This means individuals with support services can budget at an annual level if that works best for them.
Long Term Fiscal Sustainability Concerns
Prior to 2001, services for adults with I/DD in Oregon were pretty much limited to those with significant need. People living independently (with family or on their own in the community) received very little by way of services and this resulted in a lawsuit brought by concerned families (Staley v. Kitzhaber.) As a result of the 2000 Staley Agreement, a new way of providing services was born. Enter the brokerage system. Well over 7,000 people have enrolled in brokerage community-based services statewide in the last decade. Most people have somewhere around $12,000 to $14,000 available to them annually through their brokerage. This model doesn’t provide for every single need – but it does provide support to every single eligible individual.
Our concern is this: We serve people with very significant support needs, far beyond anything brokerages can fund. Family members, neighbors, friends, partners, community members and spouses play a role in each person’s support system. They provide natural supports to the individual to ensure his/her success without creating dependency on a paid system. A person, whose plan is currently $14,000 per year, could easily be reassessed and suddenly that plan will pencil out to $75,000. Conversely, those with $14,000 today could shrink to $3,000 tomorrow.
While we absolutely support the concept of providing disability-related support wherever needed, we must also consider what our budget can sustain over time. Proper assessment of available natural supports is key to the long-term sustainability of our service delivery system.
How do we avoid reinventing the system we deconstructed just a little over a decade ago? If costs grow beyond what Oregon’s budget can handle, what happens? Do we start re-determining eligibility for these services? Do we start leveling individuals? Do we begin eliminating people from accessing services (as we did with General Fund customers) so that they go back to relying on emergency state and county systems? Do we say “this year we serve people in levels 1 – 12, but next year we can only serve 1 – 10?” Oregon has done it before with Oregon Health Plan and we fear it will happen again here. Do we recreate a system where we can only afford to serve Oregonians with the highest needs while categorically denying services to those with perceived “lesser needs”?
One of the most fantastic features of brokerage services has been creating an environment where individuals who had little exposure, integration and inclusion in their communities were finally afforded the opportunity (via disability-related supports) to fully participate. That has been of immeasurable benefit not only to the individuals who are now participating, but to society as a whole. When communities are exposed to people with I/DD, societal opinions, prejudices and assumptions change. We have thousands of people with limited support needs now engaging and flourishing in their communities. We cannot roll backwards – we must ensure the new system serves all people with I/DD, no matter how “limited” their support needs might seem to the outside world. Oregon has made promises to this population and we must make good on them.
Recommendation: Again, we recommend extensive testing on the Functional Needs Assessment prior to formal implementation.
DHS Response: The department shares this concern and will be watching expenditures very carefully. Our hope is that we will be able to serve more individuals in the community, costing the state less in the long run. Thorough testing and ongoing review of the assessment tool and associated service plans will be a must.
Closing Comments
The Oregon Support Services Association membership has effectively managed significant changes throughout the twelve year history of brokerage services. Today, change is present on all fronts. We are prepared as always to adapt to the next system. By communicating concerns and offering solutions, we hope to create a dialogue whose end result maintains and hopefully enhances services for the more than 7,000 adults with I/DD we currently serve.
Download a PDF of the Position Paper and DHS’s response here: DHS Response to Position Paper from Support Service Brokerages 6 18 13
FAQs about the K Plan: http://www.oregon.gov/dhs/k-plan/Pages/faq.aspx
by independencenw | Apr 5, 2013 | advocacy, aging into adult services, caregivers, customers
FACT (Family and Community Together), Oregon Consortium of Family Networks and the DD Coalition present “Great Expectations: Preparing for Life After School,” a workshop for students and families. It’s scheduled for May 30th, 2013 from 9am to 3pm. The event will be held at the Ambridge Event Center at 1333 NE MLK Jr Boulevard in Portland. Cost is $5 and lunch is included.
The training is for parents, students and professionals.
by independencenw | Apr 4, 2013 | advocacy, employment
Stream OPB’s Think Out Loud episode on sheltered workshops here.
As much as 61 percent of working Oregonians with disabilities work in what are called “sheltered workshops,” where they perform assembly line tasks and are paid a fraction of minimum wage — sometimes as little as 40 cents an hour.
But for advocates of the sheltered workshops, these are safe, cost-effective and supportive work environments for people who would otherwise be unable to find employment elsewhere.
In 2012, eight Oregonians, with the help of the United Cerebral Palsy Association of Oregon and Southwest Washington filed a lawsuit against Governor Kitzhaber and high-ranking officials at the Oregon Department of Human Services in an effort to reform the sheltered workshop system. The Department of Justice announced last week that it would join the lawsuit, claiming that these sheltered workshops violated the Americans with Disabilities Act of 1990.
GUESTS:
by independencenw | Jan 4, 2013 | advocacy, aging into adult services, multnomah county, parenting
Do you have questions about school transition services after high school?
Want to learn more about the Portland Public Schools Community Transition Program?
Do you have questions about services for adults with developmental disabilities?
Want to learn more about brokerage services?
Join PPS and the five Portland metro brokerages in 2013 for an evening informational tea! We’ll do a short presentation on the transition program as well as brokerage services. The evening teas will include light refreshments and tea – and an opportunity for you to meet with PPS and brokerage staff. Get your questions answered and learn more about programs available to young adults in transition.
The third tea is March 20th. The event will be held at Inclusion Inc. Please RSVP by calling 503.916.5817. See you there!
Future events:
Apr 17th, 2013 – Hosted at UCP Connections
May 23rd, 2013 – Hosted at Community Pathways
All teas start at 6pm and end at 7:30pm
See flyer for details. Click here: PPSBrokerageInformationalTeas2013
by independencenw | Dec 28, 2012 | advocacy, training
Join us for a DD Coalition GO! Project Legislative Advocacy Training, sponsored by Community Pathways Inc., Independence Northwest, and the Oregon Self-Advocacy Coalition.
The GO! Project, a project of the Oregon Developmental Disabilities Coalition, will be holding its Legislative Advocacy Training: Meet and Greet Your Local Legislator this January! The DD Coalition works to inform legislators about issues experienced by individuals and families experiencing disabilities. Customers, families, advocates, and professionals are welcome to come and learn:
- How the Oregon Legislative process works
- How to develop relationships with Legislators
- How to be an effective advocate
- Current issues pertinent to Intellectual/Developmental Disabilities advocates
JOIN US
Wednesday January 30th, 2013 in Portland
2:00 pm Advocacy Training and 4:00pm Visit with Senator Chip Shields
Multnomah County Hollywood Library
4040 NE Tillamook Street, Portland
Schedule will include Legislator introductions, Dear Legislator video, and Legislator Q&A
Please RSVP/Register by submitting your name, email address and zip code to info@oregonddcoalition.org.
We look forward to seeing you there!
by independencenw | Oct 23, 2012 | advocacy
Election Day is less than two weeks away!
Need help with understanding your ballot? Or just want to vote in style? Stop by the Independence Northwest office on Halloween or November 1st, 2012, and we’re happy to assist you. We have copies of the 2012 Easy Voter’s Guide ready and waiting. (Our friends at Disability Rights Oregon continues to work with the Women Voters of Oregon Educational Fund, Self-Advocates as Leaders and Help America Vote Act (HAVA) to create the Easy Voter’s Guide. For the November 2012 edition, click here for English or click here for Spanish. If you haven’t yet, definitely check out this essential resource and share it with those you know.)
Thanks to Jessica and Lindsey for coordinating!
ADDITIONAL RESOURCES:
For an audio version of the 2012 Primary Election Guide, click here.
For an online version of the Voting in Oregon Guide in English, click here.
For a PDF version of the Voting in Oregon Guide in Spanish, click here.
Other inquiries, check out DRO’s page devoted to Voter Assistance here.
Please note: Independence Northwest does not support a particular candidate for any office and has taken no formal stance for or against any current ballot measures. We cannot and will not tell you who or what to vote for, but we’re happy to help you understand your ballot and can direct you to impartial resources such as the Easy Voter’s Guide that will assure you understand what you are voting for/against.
by independencenw | Oct 19, 2012 | abuse, advocacy
Announcing a free Mandatory* Abuse Reporting Training at Independence Northwest.
If you are paid with support services brokerage funds, you are a mandatory abuse reporter. Would you like to learn more about your abuse reporting responsibilities under the law? Clackamas County Protective Services Investigator Bryan Pollard will be here on October 25th at 4:30 pm. Providers, family members, customers and community members are all encouraged to join us at the INW office to learn more about this important feature of social services in Oregon.
Please RSVP to J at 503.546.2950. If you have additional questions, please contact Rob Peace at 503.546.2950.
10.22.2012 *Please note: The word “Mandatory” in Mandatory Abuse Reporting means that it is mandatory that a person report abuse; it does not mean that it is mandatory that providers attend this training.
by independencenw | May 9, 2012 | advocacy, employment, washington county
Project Employ Resource Fair – Tuesday May 15th 2012
EMBASSY SUITES AT 9000 SW WASHINGTON SQUARE ROAD, TIGARD
11AM – 7PM
This is a fair for transition students, their families and educators, local business owners and hiring managers, job developers and job coaches, developmental disabilities organizations and local and state agency representatives. Don’t miss this free event!
RESOURCE EXHIBITOR DISPLAYS 11:00 AM – 7:00 PM
1:30 PM PANEL OF EMPLOYMENT PROFESSIONALS
Rob Stern, HR Director; Karen Burch, OVRS; Job Developers,
Kelly Wallace and Kathy Holmquist; Emily Lang, Employee
3:30 PM PRESENTATIONS
Representative Gelser – HB2283 Impact on Transition Services Forum
Debra McLean – “Finding the Right Fit” Customized Employment
5:15 PM PRESENTATIONS
Cynthia & Andy Owens – “Mission Possible” Overcoming Barriers
Emily Harris – Mobile Technology for Job Seekers & Employees
by independencenw | Apr 5, 2012 | advocacy, autism, healthcare
The Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) is making a tool that people on the autism spectrum can use to tell healthcare providers important information. They are looking for people to review the tool and tell the researchers and share thoughts and impressions. The study takes about an hour. Participants can do the study over email, instant messenger chat, telephone, or, if in Portland, Oregon, in person.
You may be able to participate in one of the studies if you live in the U.S. and 1. You are an adult on the autistic spectrum or 2. You have assisted an adult on the autistic spectrum with healthcare appointments.
If you take part in the interview, you will be paid $50.
To learn more, follow the link or please contact Marcie Tedlow at
(503)494-1207 or tedlow@ohsu.edu.
Thanks to Genevieve Athens for the tip.
by independencenw | Feb 13, 2012 | advocacy, budget cuts
Make a difference this legislative session! We need your voice! Participate in the “Week of DD Advocacy” starting today!
2012 DD Advocacy Message to Oregon Legislators –
“Oregonians with developmental disabilities and their families can’t move backward, we need to move forward! Don’t take away our ability to continue responding to the needs of thousands of people with developmental disabilities and their families with a sustainable, flexible, cost-effective supports and services.”
Here are some ways you can get involved in our week long virtual DD advocacy rally:
FIND YOUR STATE LEGISLATORS
http://www.leg.state.or.us/findlegsltr/
1. CALL OR EMAIL YOUR LEGISLATOR with this message -always introduce yourself as their “constituent”
2. THINK SOCIAL MEDIA!
- Post this message on your Facebook wall and on your legislator’s Facebook wall;
- If you use Twitter, tweet this message;
- And lastly, the Coalition will be posting on Facebook all week so” like” and “share” our advocacy posts.
3. JOIN US AT THE CAPITOL – Thursday, February 16.
- Make an appointment to talk with your legislators and/or their staff about not cutting services to people with developmental disabilities and their families. We will be wearing yellow and have yellow buttons available for DD advocates to wear!
- For those who want to participate in the DD Advocacy Day at the Capitol on Feb 16 but can’t make it to Salem, just take photos of yourself and others holding a Print & GO Rally Sign then post it to your Facebook page and tag your legislator & the Oregon DD Coalition!
Use the Print & GO Talking Points tri-fold brochure for more information for specific budget cuts proposed and our message of advocacy for each.
Encourage your family and friends to get involved in DD Advocacy on Feb 16.
by independencenw | Jan 19, 2012 | advocacy, clackamas county, customers
Clackamas County DD Program, as part of the DD Training Co-Op offers:
Fetal Alcohol Spectrum Disorders
Presenter: Lori Thompson, MS Ed
Date: Wed., March 28, 2012
Time: 9am – 12noon
Class site: Clackamas County Public Services
2051 Kaen Rd., Oregon City, OR 97045
From I-205, Oregon City/Molalla/Park Place Exit, Right on Beavercreek (Shari’s on Left), Left on Kaen. Rd.
Course Description: These disorders are currently recorded as the leading cause of intellectual disabilities in the United States. FASD occurs in 10 per 1,000 live births. FASD is not a diagnostic term. It refers to conditions such as: Fetal Alcohol Syndrome, Fetal Alcohol Effects, Alcohol-Relayed Neuron-Developmental Disorder and Alcohol –related birth defects. The estimated lifetime costs for one child with Fetal Alcohol Syndrome alone is $2 million. This workshop will help participants understand the damage that alcohol can have on the developing brain and provide practical strategies that are most effective when dealing with FASD within a family setting, foster home environment, group home and/or day program. Individuals with Fetal Alcohol Spectrum Disorders present increasing challenges and often utilize a large portion of community based crisis stabilization services. This workshop is highly recommended for anyone who provides support services to individuals within the developmental disability community. The presenter, Lori Thompson, M.S. Ed, has over 30 years of experience working in the field of developmental disabilities.
Cost per registrant $25 (Co-Op member rate*) includes snacks and coffee/water
*Member agency staff, foster providers, & families of individuals in DD services get Co-Op rate, but DOUBLE for others.
Contact Robyn Hoffman at robynhof@co.clackamas.or.us or 503-557-2872 . Additional info about this and other DD Training Co-Op classes available at www.disabilitycompass.org .
by independencenw | Jan 2, 2012 | advocacy, parenting
Announcing the Parent to Parent of Oregon Mentor Training. Parent to Parent of Oregon’s mission is to offer high quality statewide parent to parent connections for families who have children with long-term health, developmental, behavioral or emotional conditions.
Parent to Parent of Oregon
Mentor Training
When: Saturday, February 18, 2012; 9:30 a.m. -3:00 p.m.
Where: East Rose Unitarian Church
1133 NE 181st
Portland, OR
Please call 503 706-0744 or
email p2poregon@gmail.com to register.
Pre-registration required
Lunch Provided. There is no cost for this training. Donations accepted.
Thanks, Evelyn Lowry, for the tip.
by independencenw | Nov 14, 2011 | advocacy, homelessness, housing, multnomah county
The City of Portland and Multnomah County fund year-round, winter, and severe weather emergency shelter. There are also privately-funded organizations that provide shelter services. There are 640 emergency shelter beds and 27 family spaces available year-round.
Winter shelter is available from November 1-March 31, unless otherwise indicated below. An additional 291 beds are available during the winter season, which includes winter shelter for men (146 beds), women (85 beds), and families (60 beds).
Severe weather emergency shelter is also available when the City declares a Severe Weather Notice, based on temperatures at 25 degrees Fahrenheit or below for several nights in a row, or other life-threatening weather conditions. When severe weather is declared, up to 250 additional beds may be made available for homeless persons.
Click either link below for additional shelter information:
Thanks to Natasha Roe at Multnomah County for this important set of resources.
by independencenw | Nov 11, 2011 | advocacy, aging into adult services, multnomah county, Turning 18
SAVE THE DATE: 11/22/11. Announcing the 2nd Annual Portland Public Schools Transition Resource Fair. Please join us as we partner with dozens of organizations to help bring you a resource fair for transition-aged individuals and their families. Please pass this on to your networks. We look forward to seeing you at the fair!
Tuesday, November 22nd, 2011
12 noon to 7pm
Community Transition Center at Green Thumb
6801 SE 60th Avenue (just south of Duke)
Travel Tip: Bus #19 runs on Duke Street
The resource fair is for transition aged youth (14 – 21), families, special educators, professionals and transition specialists in Multnomah County. You’ll learn about resources and services available throughout the community. It’s an opportunity to make connections, ask questions and explore opportunities.
Exhibitors and Speakers include:
ADVOCACY:
Oregon RISE
211 Info
IEP Partners
Safety Zone
SPEAC Advisory Council
Oregon First
Disability Compass
Disability Rights Oregon
Autism Society of Oregon
SEPTAP (Special Education PTA of Portland)
BENEFITS:
Brokerages (Independence Northwest, Community Pathways, UCP Connections, Inclusion Inc., Mentor Oregon)
Multnomah County Aging and Disability Services
Social Security Administration
Multnomah County Housing
EDUCATION:
Portland Community College: Culinary Program
Portland Community College: Skills Center
Portland Community College: Disability Services
Incight
RECREATION:
Trips Inc.
Portland Parks and Rec
Vibe Dance Troupe
Off the Couch
Club Impact
EMPLOYMENT:
Ticket to Work Program
Vocational Rehabilitation
Portland Habilitation Center (PHC)
CTP Vocational Training
DePaul Project Search
SERVICE PROVIDERS:
Full Life
RideWise
Art from the Heart
Project Grow (info only)
On the Move Community Integration
Independent Living Program (The Inn)
20 – 30 MINUTE PRESENTATIONS ON:
– Community Transition Program
– Transition Requirements
– Aging and Disability Services
– Social Security Benefits
– Brokerage Basics
– Parent Panel
– Student Panel
– Work Incentives
Please join us! And pass this on to anyone you believe might be interested. We look forward to seeing you at the fair.
Facebook event link: https://www.facebook.com/event.php?eid=228585253874771
Materials for Print/Sharing:
Russian Transition Fair Flyer
English Transition Fair Flyer
Vietnamese Transition Fair Flyer
Spanish Transition Fair Flyer
by independencenw | Nov 8, 2011 | advocacy, budget cuts
Just five weeks ago, about 700 people were exited from brokerage services due to budget cuts. Once again, Support Services Brokerages are showing up on a reduction option list for additional cuts. Proposed cuts would make significant reductions to brokerage operations and would slash the amount of money brokerage customers have available to them in their Individual Support Plans. A message from Erinn Kelly-Siel, the Director of the Department of Human Services was just released (see below.)
Please spend some time reviewing the letter and the accompanying links. Our state is in a very difficult space and many difficult decisions must be made. DHS is asking for comments and alternative reduction suggestions no later than THIS FRIDAY. Please let your voice be heard so we can preserve these essential services. Please forward this along to your networks.
Message from Erinn Kelley-Siel, DHS Director
As a result of the ongoing economic weakness facing the state, and the potential for additional projected revenue declines in future forecasts, Oregon’s Legislative Fiscal Office (LFO) requested the submission of reduction options from all state agencies. LFO requested agencies to develop a total of 10.5% in reduction options, based on 2011-13 legislatively adopted budget level, including the 3.5% supplemental ending balance adjustment amount. This list is due to LFO by November 14, 2011. To reach that target, the total level of reduction for the Department of Human Services is $210-220 million general fund.
REQUEST FOR COMMENT: DHS is seeking feedback on the attached reduction options [ see links below] prior to their submission to the Legislative Fiscal Office. Feedback should be submitted no later than 12:00 noon on November 11, 2011. Feedback should concentrate on alternative reductions that would help the agency achieve its savings target and/or on recommendations regarding the prioritization of the reductions on the list. Ultimately, decisions about any proposed reductions will be vetted through the legislative process.
Please note that these reduction options are not intended to reflect the policy or program recommendations of the agency. DHS is acutely aware that the reduction options on this list have significant consequences for Oregonians and the communities in which they live.
Department of Human Services Reduction Options
The list is posted on the DHS website at http://www.oregon.gov/DHS/aboutdhs/budget/2011-2013/index.shtml
Here is the DIRECT LINK to the list: http://www.oregon.gov/DHS/aboutdhs/budget/2011-2013/reductions/stakeholder-input2011-1108.pdf
Reduction Option List Format
Please note the following as you review and comment on the reduction options:
- The list is organized by major program area. Within each program area, the reduction options have been prioritized – but DHS has not yet prioritized the reduction options across the department.
- At the top of each list (in grey shading) are the reductions that the Legislature has already taken in each program in the 2011-13 budget. Some of those reductions have not yet been fully implemented. However, the savings associated with those reductions have already been included in the 2011-13 DHS Legislatively Adopted Budget.
- The list in total equates to $210-220 million in General Fund savings, the 10.5% target set by LFO. The entire list of reduction options would need to be taken in order for DHS to achieve the full savings target.
- The list is currently focused on program reduction options. Additional reductions to program delivery infrastructure and administration are still under review by DHS and Oregon Health Authority leadership.
Next Steps: If you would like to offer comment on the proposed reduction options, please send your comments to gene.evans@state.or.us. Please send comments NO LATER than 12:00 noon, November 11, 2011. DHS Leadership will review and consider all comments prior to submitting the list to LFO on November 14, 2011.
Conclusion
These are difficult times for Oregonians and for our state. DHS takes very seriously its obligation to the people it serves, our partners in that service, and to the taxpayers of Oregon. Thank you in advance for your understanding with regard to the difficulty of this task and all it entails. Your feedback is invaluable to our ability to do the best work we can with the resources we have.
by independencenw | Oct 6, 2011 | advocacy, aging into adult services, resource, training
6th Annual Building Futures Youth with Disabilities Secondary Transition Conference
October 24th & 25th, 2011 at the Sheraton Portland Airport Hotel
8235 Northeast Airport Way Portland, Oregon 97220
Building Futures is for youth with disabilities and anyone who has an interest in supporting youth with disabilities as they transition from school to adult life.
This includes Secondary Educators, Post Secondary Educators, Vocational Rehabilitation Counselors, Special Educators, therapists, counselors, service providers, job developers, and other rehabilitation specialists, and especially secondary students with disabilities and their families.
Throughout this two-day event there will be presentations by regional and national experts on issues surrounding secondary transition, post-secondary transition, employment, higher education and assistive technology.
If you would like to sponsor this annual event or receive more information, please contact Karen Ripplinger at: 503.581.8156 ext. 210 or kripplinger@oregonrisecenter.org.
by independencenw | Sep 29, 2011 | advocacy, budget cuts, community connections, customers, resource
On October 1st, somewhere between 700 and 800 people will be exited from brokerage services due to non-Medicaid status. Recently, our staff got together to create resource lists for those affected. Below are some resources that might be of use to you or someone you know.
211 – This should always be your first stop for resources in our community. This clearinghouse has a comprehensive listing of resources available to you 24/7. Check them out now!
Ride Wise – Ride Connections’ Ride Wise program teaches older adults and people with disabilities to travel independently and safely on public transportation. The services are provided at no charge for those who qualify and encompass all forms of public transportation (bus, light rail).
Independent Living Resources – ILR promotes the philosophy of Independent Living by creating opportunities, encouraging choices, advancing equal access, and furthering the level of independence for all people with disabilities.
Mint – Mint is a free money management software that will help you manage your funds so you can continue living independently.
Oregon Lions Sight and Hearing Foundation– The Oregon Lions Sight & Hearing Foundation, founded in 1959, serves as the nonprofit arm of the Lions Clubs of Oregon. Today, the Foundation continues to provide sight and hearing assistance for Oregonians in need through numerous programs that improve the quality of life of our most vulnerable members of our community.
Free Geek – Free Geek’s mission is to recycle technology and provide access to computers, the internet, education and job skills in exchange for community service.
Human Solutions – Since 1988, Human Solutions has developed a wide range of effective programs to assist families and individuals to find successful pathways out of poverty and homelessness toward self-sufficiency. Human Solutions helps families and individuals gain prosperity which in turn helps our greater community to thrive.
Impact NW – Impact Northwest’s mission is to help people achieve and maintain self-sufficiency and to prevent and alleviate the effects of poverty.
DART (Disability Assault/Abuse Response Team) – DART provides a domestic violence support group for women with developmental/cognitive disabilities. They are currently holding their meetings at the INW office. Please follow the link to learn more.
SE Works – SE Works’ mission is to strengthen the economic health and well being of our diverse southeast Portland community by facilitating successful connections between job seekers and employers.
Educate Ya – The mission of Edúcate Ya, Inc. is to foster social change, cultural integration, professionalism, and wellness education in the Latino communities. Our objective is to educate and create awareness about cultural, social, economic, and health concerns in the different Latino communities, as well as the broader community.
Latino Connections – A project of Easter Seals, LC is a grassroots employment service for employers. LC works to train, educate and motivate Latino participants focusing on employment. LC implements a holistic approach to reducing barriers to employment, fully integrating job seekers into the current workforce.
Catholic Charities – Catholic Charities Immigration Legal Services provides high quality immigration legal services to low-income immigrants and refugees, and engages in public education, training and community outreach in order to promote justice for all newcomers.
Neighborhood House – Our programs help low-income, recent-immigrant and other vulnerable people overcome challenges so they can achieve success, stability and independence.
Volunteers of America of Oregon – Our programs help individuals, families and even communities to move from instability to security, from feeling unseen and uncared for to acknowledged and affirmed and from isolation to independence.
Incight – Incight empowers people with disabilities to become contributing members of society. We accomplish this through several dynamic programs focused in the areas of: Education, Employment, Networking and Independence.
Parent to Parent – We’re a state-wide non-profit organization based in Portland, OR dedicated to making a difference in the lives of parents of children with various disabilities.
Disability Rights Oregon – Disability Rights Oregon (DRO) promotes Opportunity, Access and Choice for individuals with disabilities by assisting them with legal problems directly related to their disabilities.
Thank you to the Personal Agents of Independence Northwest for compiling this list of resources.
by independencenw | Aug 9, 2011 | advocacy, employment
CLIENT ASSISTANCE PROGRAM
Disability Rights Oregon’s Client Assistance Program (CAP) helps people having difficulty seeking or receiving vocational rehabilitation services from Oregon’s Office of Vocational Rehabilitation Services (OVRS), Independent Living (IL) centers, the Oregon Commission for the Blind, and tribal programs.
CAP OFFERS INFORMATION, ADVICE AND ADVOCACY THAT FACILITATES EMPLOYMENT AND INDEPENDENT LIVING.
We provide information about VR, IL and employment services and benefits, teach you how to protect and assert your rights, and inform you about your responsibilities. We can help. Call us.
YOUR RIGHTS:
- Determination of your eligibility for services within 60 days
- Understanding the process and how decisions are made
- Participation in assessments and in the development of your Individualized Plan for Employment
- A written copy of your Individualized Plan for Employment and all decisions
- Review of your Individualized Plan for Employment once a year
- Appeal of decisions you disagree with, including receiving a due process hearing and continuation of services during the appeal period
- Mediation of disagreements if you’ve requested a hearing
YOUR RESPONSIBILITIES:
- Communicate openly with your VR or IL counselor, including discussing your concerns, interests, desires and goals
- Maintain records of what is said and all paperwork you are given
- Keep your counselor informed of changes in your circumstances
- Ask questions when you do not understand
- Get the facts and follow the correct steps to make a complaint or to appeal if you don’t agree with a decision
ABOUT DRO:
DISABILITY RIGHTS OREGON (DRO) promotes OPPORTUNITY, ACCESS & CHOICE
for individuals with disabilities. They assist people with legal representation, advice and information designed to help solve problems directly related to their disabilities. All services are confidential and free of charge.
DONATIONS
Disability Rights Oregon is tax-exempt under Section 501(c)(3) of the Internal Revenue Code. Contributions are tax-deductible.
RESOURCES
DBTAC Northwest
Tribal VR — Confederated Tribes of Grand Ronde
Voice: 503-879-4543
Oregon’s Office of Vocational Rehabilitation Services
Voice 1-877-277-0513
TTY: 1-866-801-0130
Tribal VR — Confederated Tribes of Warm Springs
Voice: 541-553-4952
Oregon Commission for the Blind
Voice: 1-888-202-5463 or 971-673-1588
TTY: 971-673-1577
Job Accommodation Network
Voice: 1-800-526-7234
TTY: 1-877-781-9403
by independencenw | Jun 23, 2011 | advocacy
Long-time advocate and Salem resident, Judy Cunio, died June 17, 2011 from injuries sustained in her home the previous day. She was 59 years old.
A celebration of Judy’s life is scheduled for Thursday, June 30, at 3:00 pm at Salem Alliance Church, on Gaines and 5th in Salem.
Born with cerebral palsy on January 23, 1952, Judy was a pioneer of the self- advocacy movement for people with developmental disabilities. Barred from public education and institutionalized as a teen because of her disabilities, Judy fought for her independence and was determined to become a professional advocate for others in Oregon with developmental disabilities. In the early 1970s, she was a founding member of People First, now an international organization of individuals with developmental disabilities helping people learn to speak for themselves. After living in several state-funded facilities, Judy realized her dream of living independently in her own apartment, where she lived for the last 14 years.
For the past ten years, Judy served in a professional position as the Self Advocacy Coordinator for the Oregon Council on Developmental Disabilities. During her many presentations to other advocates and professional groups, Judy often said “This is the best job I’ve ever had.” She made it her personal mission to ensure that self-advocates like herself be actively included in all groups making decisions that affect the lives of people with developmental disabilities. At the time of her death, Judy was a regular and valued member of a variety of groups and organizations, including the Resource Connections of Oregon board of directors, the Oregon Disabilities Commission, the Oregon Developmental Disabilities Coalition, the Home Care Commission, Fairview Housing Trust Fund, Self Advocates as Leaders, and the Attorney General’s Sexual Assault Task Force.
Judy Cunio was known, admired and loved by many throughout Oregon and the nation. She will be dearly missed and always remembered for her passion, her unique brand of humor, her many hair styles and colors, her generous spirit, and her profound impact on the quality of life of Oregonians with developmental disabilities.
Judy was deeply saddened by the recent loss of her mother, who died June 4, 2011. Judy is survived by her sisters Kim Cunio, Brandy Brockway and Millie Young all of Salem, Kelly Allen of Gillette, WY. and Susan Campbell of Sutherlin; as well as several nieces and nephews. Memories and Stories are being shared on the Judy Cunio Memorial Website
Thanks to the DD Coalition for the information.
by independencenw | Jun 17, 2011 | advocacy
Judy Cunio, one of Oregon’s most illuminating, involved and direct self-advocates for the developmental disability community has passed away from an injury resulting from a fall in her home. Ms. Cunio was not in pain and did not regain consciousness, per Oregon Council on Developmental Disabilities Interim Director Kathryn Weit.
Our thoughts are with Judy’s family, friends and all who were lucky enough to know this incredible woman. Oregon’s DD system would not be what it is today without Judy’s voice.
About Judy, in her own words:
“My name is Judy Cunio. I have been the Self Advocacy Coordinator for the Oregon Council on Developmental Disabilities for 11 years and I have seen many changes in the Self Advocacy Movement over the years. I have been involved in some kind of advocacy off and on for almost 40 years. I grew up with cerebral palsy at a time when there was no advocating for people with disabilities. In fact, I was not allowed to go to public school. So we really have come a long way even though at times it doesn’t feel that way. Sometimes you may feel like giving up, but its more critical now than ever before to advocate for what we need and deserve. Because now more than ever we are in danger of losing many of the things we have worked so hard for. We have to keep up the good fight. We have had tough times before and we always get through them… It will take work! But anything worth having is worth fight for. And WE are worth it.”
Memorial information forthcoming.
Thanks to Kathryn Weit and Tim Kral for contributing information.
by independencenw | Jun 8, 2011 | advocacy
ABOUT FACES OREGON:
Focused Advocates for Choice & Empowering Solutions is a grass roots group of advocates for people with developmental disabilites (DD).
Our mission is to promote self-determination for people with developmental disabilities by advocating for system change and flexibility at the local, state and federal levels.
FACES was formed to unite small grass roots groups throughout Oregon, all working toward similar goals, but all “going it alone”. We joined forces when we discovered several years ago the power of working together to effect change through the legislative process. We provide a united front for people with developmental or “different” abilities.
FACES is a group of people who are civically engaged to empower people to organize and make changes for good within their local societal structure. One of our goals is to to create community awareness that people with developmental disabilities want to live self-directed, intentionally planned lives with the supports that they need to live safely and with maximum independence; that they deserve the same opportunities that all citizens of the United States expect – freedom to choose where they live, where they work, and who they interact with.
Persons with developmental disabilities want and need to live fulfilling lives within a framework that is new, not the same old entitlement system that serves few well. FACES is dedicated to make systems improvement, to change the status quo.
Join Us
FACES is a public benefit nonprofit organized as a 501(c)(4) to be effective in the politics of DD issues in Oregon and the nation. Our coalition of parent driven 501(c)(3) nonprofits in the Willamette Valley is a grassroots effort to improve the plight of persons with DD. Contact a director for information and meeting dates.
Carol Taylor, 503-789-2921 or email altrego52@hotmail.com
Gordon Teifel, 503-267-2041 or email gordon@teifel.us
by independencenw | May 11, 2011 | advocacy, aging into adult services
From Gimpgirl.com, National Youth Leadership Network, Oregon Health Sciences University, Oregon Public Health Division, and Women with Disabilities Health Equity Coalition:
Young people with disabilities have been under represented, and sometimes left out, in developing policies and programs for sexual and reproductive health. In Oregon, a small work group, with support from the Association of Maternal and Child Health Programs, is developing some program and policy recommendations to support young people with disabilities. The link below is a survey targeting young people with disabilities to assess their opinions about these recommendations.
The survey is about 15 questions and should take 15 minutes to take. We’re specifically interested in the opinions of young people in the U.S. who have a disability. An incentive of a $20 gift card from a nationally known on-line retail store is provided for the first 50 respondents.
This is a joint project between Gimpgirl.com, National Youth Leadership Network, Oregon Health Sciences University, Oregon Public Health Division, and Women with Disabilities Health Equity Coalition. Thank you for your partnership.
If you have any questions, please contact:
Thanks to Kathryn Weit for the tip.
by independencenw | May 9, 2011 | advocacy, budget cuts, resource
The latest DD Coalition GO! Legislative Update:
LAST REGIONAL TOWN HALL ON STATE BUDGET
If you live in or near Clackamas, don’t miss one last opportunity to speak to the importance of DD services! The last regional town hall on the state budget hosted by the Oregon House Democrats will be held in Clackamas on Wednesday, May 11th
at 6:30pm, Rex Putnam High School Auditorium, 4950 SE Roethe Road, Milwaukie OR 97267.
If you plan to attend this budget hearing, please be sure to wear your
Print and GO! Yellow DD Advocacy Button to show your support for DD services. It is important for the DD community to be present and visible at these hearings. Remember that you can also submit written testimony related to the State of Oregon budget to:
waysandmeans.budget@state.or.us.
MAY REVENUE FORECAST TO BE RELEASED
On
Thursday, May 12th, there will be an informational hearing at
8:30 AM in HR A before the Senate and House Revenue Committees, during which the
May Revenue Forecast will be released. You can watch live video or listen to live (or archived) audio of this informational hearing by accessing the audio/video link
www.leg.state.or.us/listn/ on the Oregon State Legislative web site. The Co-Chairs will be using this information as they finalize their budget for 2011-2013.
CO-CHAIRS’ BUDGET TO BE FINALIZED
Speculation abounds as to when the Co-Chairs’ budget will be issued. Some have heard that it will be issued in mid-May, soon after the May revenue forecast is released. Others say it will be by the end of May. What we do know is that the Ways and Means Subcommittees are working to finalize their budget deliberations and push those recommendations back out to the full Ways and Means Committee.
The Ways and Means Subcommittees have also been given the “green light” to begin hearing policy bills again as their work on the budget wraps up, so stay tuned for more announcements on bills we are tracking that have been referred to the Ways and Means Committee.
BILLS SCHEDULED FOR HEARINGS THIS WEEK
May 9th – Monday
1:00 PM HR B (PPW)/ Senate General Government, Consumer and Small Business Protection Committee:
HB 3361 (relating to accessibility of cluster mailboxes)
3:00 PM HR D (PWK)/ House Health Care Committee:
SB 99A (creates the Oregon Health Insurance Exchange)
3:00 PM HR E (PUB)/ House Rules Committee:
SB 800 (bill that removes certain outdated or redundant provisions in education laws and eliminates certain reporting requirements)
May 10th – Tuesday
1:00 PM HR B (PPW)/ Senate Education and Workforce Development Committee:
HB 2220A (relates to proficiency-based education)
HB 2283A (relates to high school transition hours)
HB 2285 (relates to consent for school diplomas)
May 11th – Wednesday
8:30 AM HR 343 (WRK)/ Senate Judiciary Committee:
HB 2652A (disqualifies certain persons from serving as fiduciary for protected person if parental rights terminated)
3:00 PM HR D (PWK)/House Health Care Committee:
SB 99A (creates the Oregon Health Insurance Exchange)
5:30 PM HR E/Health Care Transformation Committee (J):
HB 3650 (bill that sets the stage for implementation of Health Care Transformation)
May 12th – Thursday
8:30 AM HR 343/ Senate Judiciary Committee:
HB 2036A (clarifies application of statutes related to unlawful discrimination against persons with disabilities)
HB 2683A (establishes procedure to request confidential information in protective proceeding)
May 13th – Friday
3:00 PM HR D (PWK)/House Health Care Committee:
SB 99A (creates the Oregon Health Insurance Exchange)
BILLS THAT NEED YOUR SUPPORT
HB 2600 is the bill that puts Adult Support Services (Staley Settlement) into statute. It is currently in the Human Services Subcommittee of the Joint Ways and Means Committee. Please urge the Subcommittee members pass this bill out of the Committee. The following are the members of the Joint Ways and Means, Human Services Subcommittee:
by independencenw | May 3, 2011 | advocacy, budget cuts, customers
For the last several weeks, employees of Independence Northwest have been working on an advocacy effort called The Dear Legislator Project as a response to deep cuts proposed to our services. The idea for the project is simple: Oregonians with disabilities and their supporters record short 2 – 3 minute videos directly addressing their legislators with their concerns and solutions. We’ve been recording and posting these videos on The Dear Legislator Project website and Facebook and sending them off to Representatives and Senators via email. The site has had over 2,000 unique hits in just five weeks.
A couple of weeks ago, I had an impromptu visit to my office from someone by the name of Kaaren Londahl. Karen, a woman with a developmental disability and recipient of brokerage services through a fellow agency, was accompanied by Megan, a support person from the provider organization On The Move Community Integration as well as two other folks supported by the agency.
We shuffled into the conference room, Kaaren handed me a large stack of papers and said “Larry, we have got to save our services now.” She explained that she has been receiving skills training and inclusion assistance through On The Move four days a week for the last couple of years. She had heard about the scheduled cuts and The Dear Legislator Project and wanted to be a part of the solution. She shared that she recently began visiting with friends, family, community members and businesses in her neighborhood. Kaaren explained to each person what these cuts would mean to her and to the community at large and asked them each to write a short statement to their Representative or Senator. In just a week, she had over seventy-five notes and signatures. “I went to Starbucks, Kitchen Kaboodle, my neighbors, everyone!” she says. “I just wanted to do it for everyone. It’s very important for people to have programs.”
In less than a week, Kaaren helped give voice to scores of people in her community. “My mom was an advocate and so I need to be one too, you know.” Who knows – without her efforts many of those folks may never have phoned their lawmakers, written a letter to express their concerns or raised their voice in protest of the cuts. I promised her I would forward on her concerns to her legislators and mail copies of her testimonial sheets to both Representative Lew Frederick and Senator Chip Shields.
“We can’t go backwards – we have to go frontwards,” she said. She’s right. Oregon faces the most significant cuts to developmental disabilities services we’ve ever seen.
- Brokerages are preparing to lose 10% of the money paid to employ case managers and an extension of a 10% loss to our administrative dollars on top of 100% loss of our quality assurance funding. This will result is poorer services and a weaker system.
- Brokerage customers who are without Medicaid (maybe because they are dealing with Social Security appeals or are recently diagnosed with Asperger Syndrome or Autism) will be completely dropped from our rosters on October 1st. That’s 800 Oregonians who will lose all services.
- Brokerage customers between the ages of 18 and 21 are set to lose 75% of their funding because there’s an assumption that schools will pick up the slack.
- Finally, the State is poised to cut 2,000 people from their day programs. This will reduce an already limited provider pool and remove options. Many people will likely lose their jobs and some provider agency will close their doors.
I’ve always admired the louder voices among us – folks who are willing stand on the steps of city hall and raise their voices until their faces turn red. I admire the well-spoken, those who are willing to put themselves out there for a cause and affect change through words. My problem is that I’ve got a pesky shyness that chokes me up every time I try to speak publicly. Things just don’t flow and I decided long ago that such efforts are best led by those with such gifts. The concept of The Dear Legislator Project gave me a way to get involved without being front and center. We all need forums that work for us. For some people, it’s getting up in front of hundreds of people and testifying, for others it’s recording the stories of others. For others still it’s collecting signatures and stories and concerns from neighbors and community members.
If you’ve yet to get involved, I urge you to do something this go round. We are at serious risk for significant changes to the way Oregon supports people with disabilities. Right now, we’re in the final stretch. In a couple of weeks we’ll know what will be cut and how deep.There’s still time to make a difference. Please consider sending a message to the Ways and Means Committee at waysandmeans.budget@state.or.us. Even if you just send a few lines, it sends a message.
“Fight for our programs so we can move on,” Kaaren said just the other day to me. It’s good advice. Fight – however it makes sense for you.
– Larry Deal, Executive Director of Independence Northwest
Six years ago today Independence Northwest became a fully-funded Oregon support services brokerage. Thank you to our founding and current board of directors, our many stellar staff members past and present, CDDP and provider partners, fellow brokerages, and customers and families for your belief, support, guidance, and partnership these past six years.
