Carespace.com is the first major online community for caregivers. It’s a place for caregivers to meet, develop relationships, share stories and garner support for one another. They’re in their beta testing phase right now – you should join in and check it out.
While the community site is being tested and readied, you can check out their highly regarded blog here. Below, a snippet from a recent post.
The responses to my last post illustrate some of the many takes on the word “caregiver.” I’m grateful for all of them. Intense feelings about who we care for often supercede more general ideas around “caregiving.” So much so that any talk about grouping us together sometimes seems to detract from the individual experience.
At the same time, we know that parents of children with different illness or disabilities have a lot to share by way of information and support — even though when we do go looking for others, our search usually follows along the trail of a particular medical issue.
So I’ll be direct about the challenge of building the community for Carespace. I know that Carespace must be valuable and inviting to a mom and dad with an autistic child who want contact with others just like them. I also know that they may benefit from interaction with all sorts of moms and dads. (Not to mention that they may also be caring for an elderly relative.) But the reality today is that we haven’t established the idea of a global community of “caregivers.” It’s not yet ingrained in the overall dialog. To make this concept useful, we’ll have to discover the value of links between different “caring types.” This is something most of us will have to experience before we take it for granted.
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